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Staying healthy in lock-down....we’ll sort of!

silverbadger profile image
9 Replies

I was reading in a magazine about how to keep healthy in these times of lock-down. All the usual things such as fresh fruit and vegetables, plenty of water, high fibre diet, mindfulness and where possible daily exercise. If, like me, you have probably read it so many times you wonder why you are killing time reading it yet again. So I thought I would give a slightly different approach to what keeping healthy means to me...

I’m a Crohn’s suffer for over 40 years and during that time have had many major surgical procedures, some that have saved my life. But that’s not the keeping healthy bit it just explains this next bit.

.....and at the start of my Crohn’s I was a healthy, magazine healthy, highly active, tea total, vegetarian. Over this time and as a side effect of the Crohn’s and surgery my dietary constraints are now such that I cannot eat leaf vegetables, high fibre, nuts, mushrooms, pulses, sweet corn, fibre such is found in brown bread, unprocessed wheat such as In whole grain bread, skins, celery and dried fruit and peel as found in cakes and as healthy snacks

My being healthy is being confined to root vegetables but in moderation and that have to be cooked until soft and without the skin. High fat products such as batter and butter, meat ‘ red meat is beneficial’, products containing gelatine as is found in some yogurts, pork pies and jelly-babies. This is my keeping healthy

I used to smoke 5 cigarettes a day and when I stopped my Crohn’s would flare up. At one uncontrollable hospitalised episode of Crohn’s, 4 weeks into a 7 week stay, i was asked to start smoking again. It is known that something in cigarettes can, in some people, reduce the severity of a flare up. I didn’t start smoking again, for the obvious reasons and wouldn’t advise anyone else to smoke. But they did have to remove my colon. This is my keeping healthy.

In hot weather I became dehydrated, one of the functions of the colon is to take the water from ones food, and as such made sure I drank more water than usual but this didn’t seem to be working. When admitted to hospital for dehydration I was told that I was drinking to much water, without the colon the extra water I was drinking was flushing water out of my system. This is common in those without a colon and/ or with a shortened small intestine.

I am now limited to 2Lt of fluid a day, this includes all fluids such as coffee, tea and water. 1Lt of my 2Lt of fluids has to be made up of 1Lt of water that has added to it half a teaspoon on bicarbonate of soda, 6 teaspoons of glucose powder and 1 teaspoon of salt, this being drunk throughout the course of the day. This too is my keeping healthy.

By keeping to this healthy diet and being as active as is possible I can maintain my periods in-between my Crohn’s flare-ups as to what is recognised as being for me keeping to a healthy lifestyle.

I’m sure I’m not the only one who has a slightly different healthy living aspect to the usual, a friend of mine is not allowed to eat anything at all. His food is from a big bag that he is connected up to each night and is gradually pumped into him while he sleeps, something that was also my new healthy, but for me only for a short period of time. I would like to hear what your different being healthy consists of?

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silverbadger
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9 Replies
springcross profile image
springcross

Goodness silverbadger. That puts a lot of things into perspective. What a nightmare you have been through! Your friend has too, obviously. I can't begin to imagine how difficult it must be for you but you have explained it so well. All the things that we take for granted and are told to eat because these things are good for us is probably just a memory for you and all this has happened to you, a healthy person doing and eating all the right things. It just doesn't make any sense.

I have heard that about cigarettes before but not about Chron's. It was someone several years ago who was elderly (now deceased for many years) and had lung problems after years of heavy smoking. She stopped smoking as she was having certain problems (I can't remember exactly what it was) but it was a problem with her chest that they couldn't cure and she was advised to take up smoking again to help it. She took up smoking again (much less than before) and it helped her problem. She was my sister's M-i-L so I know that it's true. All the best to you. x

Patsy10 profile image
Patsy10

I'm afraid that my idea of being healthy is boringly normal, although I've never practised Mindfulness or 'head banging' and don't exercise as much as I should due to shielding at present.

Reading your post has made me very aware of the things so many of us take for granted

and I shall really appreciate the Sunday Roast that my hubby will be cooking later.

Do take care and keep smiling, as you obviously are.

It's true silverbadger, the general view of what's healthy to eat and a good lifestyle is downright dangerous for some people. Of course most things one reads are aimed at the majority but there are many people having to adapt their diet to what will work for them. And it may be well outside what's considered 'healthy'.

ellj profile image
ellj

Hi Silver-badger, I am sorry you have had such a rough ride and believe me I do know some of what you have been through.

My adult son has had a remarkably similar ride.

Before he was diagnosed over twenty years ago I was desperately trying to help him with his healthy eating and eventually we did an exclusion diet. The very best he ever was when we reintroduced beef and mash potatoes. He now sticks to this whenever he has a flare.

Like you he must be very careful with vegetables and fruits and many more foods which others eat to be healthy.

I have seen many surgeries for C and C when I worked and it is a horrible disease.

Hoping you have an easier future.

Best wishes.

Ellie

SORRELHIPPO profile image
SORRELHIPPOReading Rabbits

Speaking as a fellow Chrohn's person, I can pretty much echo your write up word for word. Do eat some of the good quality baby food sometimes as I get fed up with liquidising things myself. I must admit to rarely drinking plain water, often I have Dioralyte in it. Am very lucky, that although I have narrowing at the end of the small intestine, and part of them coiled up in a hernia, I still actually have most of them.

viswamitra profile image
viswamitra

I read an article a few years back mentioning that a lady in UK found out a cure for her crohns by taking a herbal preparation and that she was trying to get a patent for it..Any idea about it. What is the best treatment for crohns as of today and the system of medicine in which it is available.My grand daughter is suffering from it and is undergoing treatment(steroid)

silverbadger profile image
silverbadger in reply to viswamitra

The most common treatment is steroids. On top of that, depending on the severity, there are many others. But I don’t feeI it would be right to list them. Your grand daughter will have a treatment that is individually to her needs to control her Crohn’s flare-ups. I personally have yet to find the ‘wonder cure’ one sometimes finds featured in popular magazines. What I would say is that if anyone is recently diagnosed with a digestive disease to be assured that it was not as a result of anything you have done or have not done. Anyone can find that they have Colitis or Crohn’s and while there is no cure there are a lot of options available to the medical specialists to enable a good control of one’s symptoms.

The vast majority of those with Colitis or Crohn’s will never ever need to be admitted to hospital or need surgery and with the help of their doctor will lead a completely normal life. I was just one of the tiny minority.

There are many good online sites for those who have a loved one with, or find themselves with Crohn’s or Colitis. We even have our own dating sites..ha ha

silverbadger profile image
silverbadger in reply to silverbadger

There is a very good section for Crohn’s and Colitis on here, containing a lot of useful info

viswamitra profile image
viswamitra

Thank you

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