I took my mother to see GP this morning. She changed surgery when she moved abt 2 yrs ago. New practice has 8 GPs but getting appts is challenging. Rarely see same person. She's seen 4 GPs so far. Luckily last week booked cancellation appt for today. (Only 4 appts available to see any doc before end of first week of Jan - now wonder A&E departments are busy).
First thing today's GP said was "it would be better to see your usual GP" Haha - would if we could.
My mother has been taking pred for PMR for over 25 years. Previous GP reduced dose to 1mg; but when she moved surgeries new GP said that wasn't working and put it up to 15mg. In 18 months she has put on over a stone in weight. Today's GP she shouldn't have been on 15mg for so long and essential to get dose down asap so she is starting on 12.5, 15 for next couple of weeks; aiming to get to 10mg by end of Jan.
I also have PMR and am now down to 8mg. After a reduction from 20mg to 15mg at the beginning and a big flare up, I am doing my own thing - going really slowly. It seems to be working. Next week 887887 then 878787 and finally 777777. Occasionaly my legs ache but so far one paracetamol or ibuprofen has done the trick.
It seems to me that even the GPs in one surgery give different advice. I know Kate you spoke to Rheumatologists at their conference this year. Is there some way to keep GPs better informed? The trickle of information down seems to be a bit hit and miss. Reading messages of people's experiences and difficulties on this forum especially with regards to reducing steroids I feel it is often the case of the user understanding best what to do.