I had PMR for 6 years, GCA for 4. Started 2018. Just getting remission from those when hit with Graves’ disease and AFib. Thyroid has normalized with medication but still dealing with AFIb. Gone from 1 med to a total of 5. Should I worry about taking 1 mg pred for well over a year or should I start the DSNS again to at least be done with one drug. The pills are so small to cut. I would probably do a quarter at a time but with the remission maybe a half is ok.???
stay on 1 mg or wean off. : I had PMR for 6 years... - PMRGCAuk
stay on 1 mg or wean off.



To be honest, I wouldn’t be stressing about being on 1mg of Pred… when you feel able then maybe try half a mg - but no great rush…

Sometimes it's like a talisman! Prof Dasgupta told us he sometimes keeps patients on 2-3mg longterm to reduce the risk of relapses. If 1mg does it for you - so much the better.
I had a real uptick in my a/fib after the bivalent Covid jab just over 2 years ago and they finally offered me an ablation which was done January last year. Apart from a slight stirring after a bisphosphonate infusion which settled after a few months and wasn't repeated with this years - almost no a/fib! Still on the medications but I'll accept that.
Thanks, I’m hoping to get on the ablation list here. It’s long. I may be best to stay on the 1 for life. Got enough problems.
Hi Canada from another Canadian. I've been off for 2 yrs now after 8 yrs with pmr, and I can honestly say your so close to the end if it is the end, take it slow.
I used the Dead Slow Method with breaks in between. What's the rush now.
Best of luck