My GCA/PMR was diagnosed 3 1/2 years ago. I’m at 1 3/4 mg of prednisone and I’ve been using your 7 week tapering plan for several months now. I have had a few afternoons and evening with some pain in my left temporal as it was in the beginning. I chalked it up to Christmas and over doing exercise. I was fine the next day.
Now I’ve met with a new rheumatologist two times. I told her I had pain in my left temporal but it went away. She thought that was very odd and said the pain should be in my jaw and have blurred vision.I told her it was the same pain as the beginning (but milder) and she said maybe it was from the biopsy.
I have not told her my tapering plan as my last doctor was so confused by it she had 2 different nurses and the pharmacist make sure I knew what I was doing. I got tired of explaining it (I did send them a copy). In the end I just continued with your plan.
Now my new doctor wants me to do 2 mgs one day and then 1mg the next day for a month.
I can’t find info on this system and would so appreciate any comments. Thank you so very much.