Facing the Day

[cycli]

When physical work outside looms large,

is it the pain or depression in charge.

When weather is bad and you're ever so queasy,

stirring ones loins is never so easy.

However the same can never be said,

even when snug in a nice warm bed.

When the weather is sunny in anyone's book

You have to get up and go take a look.

Sometimes it's hard for whatever you think

Our bodies are often just out of sync.

Others expect and our mind says to go,

but the truth is much harder as you here all know.

So sometimes we use this excuse when we're lazy.

We have to be honest or else we'd go crazy.

We've struggled for years to find some surcease,

that we feel justified in taking our ease.

The truth is much harder as most of us know.

Every new morning we wake ready to go.

Each day is quite different,we never can tell,

If today is a blessing or a new taste of hell.

Without prednisone that much needed pill,

we'd all be much worse off and feeling quite ill.

So gird up your loins to face a new day.

Today you'll feel great; though you never can say.

I'd be wrong not to mention the downside of this.

The loss of strong muscle is hard to dismiss.

The fragile thin skin so easy to bruise.

The trip we all take is no luxury cruise.

All of us strive to be free from this fetter.

We try every day and hope to get better.

The harder we try we all risk a flare.

There's never a gain without a big dare.

So don't be depressed however you feel.

Every new day there is hope and it's real.

Smile and get ready, you never can tell.

Maybe today is the last of your Hell.

[piglette]

Brilliant.

[cycli in reply to piglette]

ta Piglette

[Koalajane]

Cycli, where do they all come from.

I really can relate to this one. Well done

[cycli in reply to Koalajane]

Truthfully I don't know Koalajane. I've always had a way with words. Some say too much!!!! I just sit and somehow the words flow. I have an idea and write the first line however it comes. Then I look at the end and see if there's a rhyme. If not I keep the sense and write another line with a rhyme potential. The rest flows from the theme and how I feel. Simple really. Have a go.

[cycli]

There was a reply from Twopies which said she could have written this. My reply is that this is a real compliment. This disease makes us all feel this way. For some reason this was deleted. I've no idea why.

[Miserere]

Love it - especially today ... Thank you!

[cycli in reply to Miserere]

Welcome Miserere. bing.com/videos/riverview/r...

[123-go]

Well done, cycli. 👏👏👏

[cycli in reply to 123-go]

Thanks 123-go. Read your bio. I also have that tingling and numbness. Down to 1.5mg and also on Leflunomide 10mg daily. Told to keep on this when I zero for 3 months. I wonder if the tingling and numbness is down to leflunomide.

[123-go in reply to cycli]

I have mentioned the tingling toes several times and nobody I’ve seen appears to see it as a problem. As it hasn’t got any worse over the years I have chosen to ignore it. I finished pred in January this year and was told that I’ll be staying on 10mg leflunomide for ‘a while yet’.

[cycli in reply to 123-go]

I've raised this also and I don't think they think it's an issue. If they had it I bet they would think differently. It's a nuisance. It feels like walking on sponges.

[PMRpro Ambassador in reply to cycli]

When it is in a patient on leflunomide they jolly well SHOULD be listening. Someone said recently their rheumy told them it wasn;t the LEF. I beg your pardon??????

[cycli in reply to PMRpro]

Thanks PMRpro. It's not that debilitating but it is a bl**dy nuisance. If the lef. is helping me reduce then I suppose it's worth it.

[123-go]

Ooh! That does sound horrible. I notice it mostly when I’m sitting . Couple of oddbods aren’t we?

(Apologies to everyone…..couldn’t resist.)

Tingling in the Toes

Tingling in the toes that adds to our woes -

What can it be due to? Nobody knows (should have asked our own guro - yes PMRpro!)

It will be a relief when it finally goes

So let’s hope this strange happening is soon brought to a close.

[cycli in reply to 123-go]

why are you still on leflunomide 123-go? My rheumy only wants me on it for 3 months after I stop taking pred. You should have been off it by that measure in May.

[123-go in reply to cycli]

I have an aortic aneurysm. PMR is in remission.

[cycli in reply to 123-go]

Sorry to hear that. Hope lef. helps.

[123-go in reply to cycli]

Thank you.

[cycli in reply to 123-go]

like the ditty despite all the woes.

[Claremarie83]

Brilliant!!

[Angelsmummy]

It's so very hard we all feel this way,not knowing the pain we might face today. You put into words the trials we all face,just wanting to run,but all is slow pace. But onwards we plod what else can we do,keep up with the poems they help get us through! Well done cycli!😜🚵🏼‍♀️🚵

[Mfaepink1973]

Brilliant!

[AshPen9]

Thanks for that cycli!

[Flutterbies57]

I absolutely love this ! 😘It is perfect!

[Bcol]

You are definitely on a roll Cycli, brilliant as always. 😃😃

[Den73]

Oh wow....needed that encouragement this morning.Its comforting somehow to know someone, just someone understands!

Thank you to all on this site, for all the good advice and understanding....so forward we ho.

Been a very trying 2 or 3 months for me, now have kidney infection 😅 each day something new.

Thank you for sharing. Xx

[strawclutching]

Excellent!

[Macas]

Great everything aches this morning!! But you made me smile thank you

[Tiggy70]

brilliant! Perfectly sums up our PMR/GCA journeys.

[Zebedee44]

I’d say this is your best work yet, cycli. It’s so depressingly correct. I still find the hardest part of PMR to be the inability to plan ahead and to achieve my plans . Keep the poetry coming, it’s a bit of light relief for us all.

[cycli in reply to Zebedee44]

Thanks Zebedee44

[Grantoday]

Thank you!

[Animalover65]

Fantastic, your poems brighten up the darker winter days! Do keep them coming!😊🌺

[Bearscare123]

Really made me happy today!

[cycli in reply to Bearscare123]

Intriguing name. Were you scared by one or do you care for them

[cycli]

I'm so happy that my ditties help people along this path.

[Posey1]

I love this! Well done you 😊

[guineapigharriet]

Well said and a great poem thank you.

[Limpylissy]

thank you so much for this cycli. So good to be reminded that so many of us are fighting the exact same battle (and that we will get there in the end). More love to you xxxxx

[cycli in reply to Limpylissy]

It's very hard to take Limpylissy. Given where I started from I found it almost impossible to accept what I had become. In truth I still find it hard but I remain positive despite everything. you are still holding a job and are younger than me so it comes very hard for you. There is very good advice on this forum so please take advantage of it.

[carivinv]

Thank you, it is exactly my fillings

[cycli in reply to carivinv]

Hello Carivinv. No profile but I see you only joined 3rd oct. Welcome to this journey none here chose.

[carivinv]

Thank you. We all try our best. Your poem made my day

[cycli]

How long have you had GCA Carivinv, and what dose of pred. are you on. A full profile would help those more knowledgeable than I to offer you advice when needed.