Thank you PMRpro. Yes I feel the PMR is well controlled - was nervous this week that GP might want to reduce the dose of pred (20mg currently) but he is happy to keep it at this level at the moment. My nervousness is because on a sunday when I take the pred 3 hours later than normal I do have many more pains and aches until they kick in so I'm assuming the 20mg per 24 hours is what is necessary to control it at the moment.
Difficult to say - it may simply be that the antiinflammatory effect isn't lasting more than 24 hours so that morning batch f inflmmation is getting an extra 3 hours to get going before the pred kicks in.
As you still seem to be struggling a bit on 20mg, although as PMRpro has said, early days in the great scheme of things, can I ask
a. As you are in your 50s are you still working? and
b. Are you treating yourself as a poorly person, and pacing yourself, or trying to get back to normal activities?
PS - just seen in a reply to another post you are still working… that makes a huge difference to some… what sort of work - stressful, energetic? Have you had any time off sine diagnosis?Is management aware you have a serious illness and making allowances?
Hi DorsetLady - I am still working full time but from home so no commute stress etc. It is a stressful job but is computer based (I run the news and training websites for a global company).
Management are aware and have put things in place like I must not attend company events or try and do any office days for as long as treatment lasts. They know I lie down every lunchtime so no-one is allowed to schedule meetings with me then etc. They could help more by reducing some of my work load but that is not forthcoming at the moment.
I've had one day off sick and two half days for medical appointments. I do treat myself as poorly yes but possibly not enough. I used to be on 20k steps per day and ran every single day and I prob average about 1k now.
I am considering taking a couple of weeks off soon to just decompress and give myself time and space to adjust to the new me which I know I have not done properly yet.
I think I've adjusted my activity etc but not my brain. However my brain still thinks I'm 18 so that might take a while!
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