I am so grateful for all the replies I have received. I don't feel so much of a freak anymore.
I have lurked, where possible but didn't have the courage to post, I wish I had now.
From some of your posts it seems to me that there is still a lot more that could be done for GCA sufferers, one point in particular being the actual diagnoses. Another being the lack of information given by the health care providers.
Once again, many thanks.
Prims
PS You might be fed up with my numerous questions later!