Cracked tongue. : Right side of tongue is sore... - PMRGCAuk

PMRGCAuk

21,317 members40,425 posts

Cracked tongue.

Merryfield profile image
31 Replies

Right side of tongue is sore. Opened mouth to examine (blisters). and found that my tongue is cracked all over! Ugh! Worse to me than black face hair, bruised legs, moon face and bison hump. Anybody else experience cracked tongue w steroids?

Written by
Merryfield profile image
Merryfield
To view profiles and participate in discussions please or .
Read more about...
31 Replies
SheffieldJane profile image
SheffieldJane

I have experienced a very dry mouth and have been prescribed pastilles that ease it at night. What does your GP say?

Rachmaninov2 profile image
Rachmaninov2 in reply toSheffieldJane

Same here. I have been waking up in the night with a very dry mouth, I know I breathe through my mouth when I am asleep. Did your GP prescribe the pastilles?

Merryfield profile image
Merryfield in reply toRachmaninov2

I sleep w mouth open too. I am drinking more water but icky tongue

Rachmaninov2 profile image
Rachmaninov2 in reply toMerryfield

I think breathing through the mouth draws air in, which adds to the problem, which in my case only started after I started taking heart medications.

SheffieldJane profile image
SheffieldJane in reply toRachmaninov2

Initially I was prescribed some pretty useless gel. The pharmacist recommended Salivix pastilles that work well. I have managed to get them on prescription.

Rachmaninov2 profile image
Rachmaninov2 in reply toSheffieldJane

Thank you for the info. very helpful. I will try the pastilles. Glad they are helping you, it’s a real nuisance.

Merryfield profile image
Merryfield in reply toSheffieldJane

Hi, Sheff. Will ask his thoughts. Need to communicate w him on several things.

SheffieldJane profile image
SheffieldJane in reply toMerryfield

write yourself a list. X

RachelJDH profile image
RachelJDH

Sorry but your post made me laugh so much as that was my list of misery plus terrible cramp which magnesium is not really helping (prob giving me an upset stomach making me dehydrated). 😅 my language has got worse too!!

PMRpro profile image
PMRproAmbassador in reply toRachelJDH

PMR-induced Tourettes - and it is PMR, not pred. I had it long before I went onto pred!

And please try to get the GP to check your calcium and potassium levels - also potential candidates for muscle cramps.

Merryfield profile image
Merryfield in reply toRachelJDH

oh brother, it never ends!

Merryfield profile image
Merryfield in reply toRachelJDH

Sorry about the cramps. Learned to cuss from my stepdad so not PMR!

PMRpro profile image
PMRproAmbassador in reply toMerryfield

I learned it from my holier than though grandfather but I did control it fairly well until PMR!!

Merryfield profile image
Merryfield in reply toPMRpro

Let it fly!

Missus835 profile image
Missus835

Maybe thrush? Yes to all the others. Facial hair is peach fuzz though the hair on my head is now more salt and pepper than the silver it was. Hair on my arms is ginger (never before) and quite a bit of it. I may have back hair, but I can't really see it. Armpit hair ha stopped growing for the mostpart. LOL.

Merryfield profile image
Merryfield in reply toMissus835

I got my hands and fingers waxed. Monkey paws!!

Missus835 profile image
Missus835 in reply toMerryfield

😂

orangemax profile image
orangemax in reply toMerryfield

I don't get it! Why would you do that??🦁

Merryfield profile image
Merryfield in reply toorangemax

i was having a mourning ring made and the hair on my fingers was so long it was embarrassing.

Cofab2 profile image
Cofab2

Hi Merryfield, are you on methotrexate by any chance? I was diagnosed in 2015, been ups and downs with pred, and Rheumy put me on methotrexate to help weaning off pred. (BTW, I had every side effect there is to pred). I developed the sore mouth as you describe. I had huge cankers on my tongue, could hardly eat. Well, that’s one of the side effects of methotrexate. Once I was off, my mouth finally healed. I am down to 5mg of pred, which is where I have to stay, as when attempts to go lower causes a flare, then back up again! PMR changed my life drastically. I was healthy and very active, now, not. (PS, I am in US, also)

Merryfield profile image
Merryfield in reply toCofab2

Hi, Cofab. Not on methotrexate. Steroids and diabetes meds. (and bp, statin, antidepressants). Glad your mouth has healed. Am trying a peroxide mouth wash for blisters. Doubt that it will help cracked tongue.

Cofab2 profile image
Cofab2 in reply toMerryfield

Hi again, one thing that soothed my large, painful blisters/cankers, was honey. It has healing properties. I had a script/mouth rinse from my DDS, which didn’t help. Good luck

Merryfield profile image
Merryfield in reply toCofab2

thx!

Wallysma profile image
Wallysma in reply toMerryfield

Hi...I had issues with a canker for months that would not go away. I had tried OTC stuff then saw doc after that I was given 5 different treatments. I knew I needed an antibiotic...FINALLY the treatment that worked, a specially.made mouthwash with an antibiotic in it, worked. It helped my tongue some but it is still sore at times. I like spicy food which does irritate my tongue.....I.am hoping it will eventually go away. The.canker.sore was extremely painful...it would wake me up. Not just sore but throbbing pain. Very happy that is gone! Good luck..

I hope you can get something for it.

Merryfield profile image
Merryfield in reply toWallysma

Wow, that is one sore tongue! I am calling doc today for tongue issue appt.

Wallysma profile image
Wallysma in reply toMerryfield

Good idea....good luck. I hope you get some treatment and it works right away. 👅

PMRpro profile image
PMRproAmbassador in reply toCofab2

It IS one of the side effects of MTX - but you should have been given enough folic acid to prevent them forming. Some people need more than others and some doctors seem to think 1x 5mg folic acid a week is adequate but it rarely is.

Merryfield profile image
Merryfield in reply toPMRpro

folic acid. good idea.

Cofab2 profile image
Cofab2 in reply toPMRpro

Hi, I was prescribed folic acid, but as you stated, probably not enough to offset the condition. Thank you and others for helping. I found this forum after diagnosis in 2015. It let me know I wasn’t alone, and not ‘imagining it!’

choirsinger1986 profile image
choirsinger1986

I use an alcohol free mouthwash for any mouth sores I get, which may or may help your cracked tongue - along side any gel to help lubricate and heal.

Merryfield profile image
Merryfield in reply tochoirsinger1986

Thank you.

Not what you're looking for?

You may also like...

TONGUE UPDATE

Posted about thrush on tongue a while ago. GP referred me urgently to Consultant at local hospital...
joat profile image

Sore Tongue

I've had a sore tongue for 3 years since being diagnosed with pmr. My dentist just said its typical...
Paperroses profile image

Tongue

Morning all.,, has anyone suffered from small spots on their tongue. I have noticed small like...

GCA and sore lumpy tongue

I've managed to get to 5.5mg with the help of Actemra over the last 16 months, not as fast my my...

Sore Tongue

Hi, Does anyone have problems with a sore tongue, I get this from time to time. ?? Steroid...

Moderation team

SophieMB profile image
SophieMBPartner

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.