Thank you so much for following me on this journey with PMR/GCA.( Diagnosis based on symptoms).I still have ongoing headaches, scalp tenderness and developed some jaw claudication a few days ago, so I am now taking sixty mg. of Pred. My fevers and night sweats went away a few days ago. My PMR symptoms are gone.
I was just approved for monthly Actemra infusions , most likely for 18 months. My rheumatologist says this will allow me to reduce my Pred much sooner.
The possible side effects to me are frightening ( diverticulitis, MS , possible carcinogen, pancreatitis, liver disease).
Not treating this, nor being on high doses of Pred is also frightening.
One of you responded by saying why not take Actemra if you have the option? Is that the general opinion?
I have fortunately been healthy all my life, and generally active and so this has been an interesting journey. I am still biking and walking, and intend to try fasting one day a week to hopefully knock down the inflammation.
I value your thoughts. I can still say no to Actemra.