After 4.5 years of PMR I was diagnosed with GCA September 2023. In late November my insurance approved me for receiving Actemra. I did not receive my first dose till last week, Dec. 14. I felt fine that day. The next day I could hardly get out of bed, felt very bloated and nauseous. After eating toast in the morning to take my meds, I spent the rest of the day and night in bed. I have felt this way for the next 3 days, not being able to eat and nauseous at the thought or sight of food. I am feeling much better here on day 6 since my injection and able to eat a small portion of food without feeling ill and bloated.
I have spoken to both the pharmacy and my Rheumy about these symptoms and the plan is not to take my scheduled injection this week and try again the following week to see if this was due to Actemra or a virus.
Here's the question: Has anyone out there experienced these similar symptoms from this medication and is so, were you not able to take Actemra at all, or did your symptoms dissipate with continued use over time and were able to get the benefits of using it?