PMR Hip Pain-I think!: I have been tapering 1/2mg... - PMRGCAuk

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PMR Hip Pain-I think!

RaisinBran profile image
15 Replies

I have been tapering 1/2mg for the past 6 weeks and am down to 3 1/2mg now. I have significant pain in my hips which is making it extremely difficult to walk because the pain hurts that much. This has been going on for at least 4 weeks. Has anyone ever experienced this before? My rheumy said to go to 5mg for a week and see if that resolves the pain. What do the experts think?

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RaisinBran profile image
RaisinBran
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15 Replies
piglette profile image
piglette

I think I would go up by 5mg for a week and really try and knock the PMR on the head.

RaisinBran profile image
RaisinBran in reply topiglette

thanks piglette

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer

Follow rheumy’s advice…

InTheMoors profile image
InTheMoors

My sympathy RasinBran.

My PMR has settled on my hips although I don't suffer as much pain/discomfort as you. Physiotherapy has helped me and was recommended by my consultant (I was already seeing a physio.). I'm currently on 8 mg. Increasing/decreasing didn't work for me. I tried this for six months last year.

My consultant suggested painkillers when I had a bad day and advised I use co-codamol 15/500. I keep their use to a minimum. Has anyone suggested this to you? it might be worth mentioning this to your doctor/consultant.

RaisinBran profile image
RaisinBran in reply toInTheMoors

thank you, i certainly will explore that.

InTheMoors profile image
InTheMoors in reply toRaisinBran

Other things that help me:

1. This morning my hips/thighs were aching quite a bit. I've just been on my cross trainer. My legs now feel better. The exercise forces blood/nutrients into the muscles.

2. Protein. I ensure that i have close to 100 g of this every day. As you get older the body's ability to produce this declines and needs replacing. I take biltong (aka beef jerky), whey drinks, protein bars and collagen (mixed in drinks). You can up your protein with just your diet. For example, every morning I had two large eggs which give me 12 - 15 g of protein. Eggs also include the nine essential amino acids

3. Supplements. Every morning I take two turmeric capsules, a garlic capsule and a one vitamin D3 tablet.

4. Every week I see a physiotherapist/health coach and have done so for over twenty years. A few weeks ago he noticed that I wasn't walking correctly and this would be putting pressure on my hips. He worked on my feet and this eased my hips quite a bit.

My consultant is aware of the above and approves all of it. He believes, as I do, that my lifestyle helps take the edge off my PMR. I don't seem to be suffering as much as many on here.

I appreciate that what works for me won't work for others.

PMRpro profile image
PMRproAmbassador

I seriously doubt that going up to 5mg will do a lot but you can only try it to see.

I develop trochanteric bursitis which causes hip pain and while over a longer period a higher dose of pred will improve it, sometimes a steroid injection does a far superior job.

Elmadon profile image
Elmadon in reply toPMRpro

Steroid injection for bursitis in one hip got rid of my pain. Not related to my PMR pain.. very different

PMRpro profile image
PMRproAmbassador in reply toElmadon

But hip bursitis is a part of PMR, the muscle pain and the bursitis pain are very different but they have the same underlying cause.

Pixix profile image
Pixix

I have bad hip pain,but only in one hip, & was diagnosed with trochanteric bursitis. But I think it’s more likely in one hip than two! I hope you don’t have it!

PMRpro profile image
PMRproAmbassador in reply toPixix

I get it in both though more/first in the right.

Pixix profile image
Pixix in reply toPMRpro

Interesting, as I had a twinge on my other hip…but when they x-rayed it (to find out how bad the arthritis had become), they found bone was growing on the muscles round the hip joint! Ossification rules, OK!

PMRpro profile image
PMRproAmbassador in reply toPixix

Dem bones, dem bones, dem dry bones ...

Pixix profile image
Pixix in reply toPMRpro

YES! Everybody else losing bone density, bones etc…& I’m busy growing extra!! Typical! S x

mtrafter profile image
mtrafter

I too experienced hip pain and thought it was a flare, when increased pred did not help found as Pixix found was diagnosed with trochanteric bursitis that was relieved with steroid injection!

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