Prednisone Tears & Mood Swings

[autumnlass]

Have had plenty of those in the last months when flare started soaring and went back up to original dose of 15 mgm and now down to 11 mgm..

My Ukrainian Wreath on the door stopped me from being self pitiful. xx

[Kendrew]

That's really beautiful, and focusing on how fortunate we are compared to so many others will help keep things in perspective. Its always disappointing when a flare occurs but most of us have been there at some point and understand your frustrations.

Take care and good luck with the tapering.

[autumnlass in reply to Kendrew]

Thank you Kendrew. 🥰

[SheffieldJane]

That’s beautiful. I hope you’re steady now.

[autumnlass in reply to SheffieldJane]

See below SJ - filled in the wrong box! 🤣

[autumnlass]

Much steadier thank you SJ … but this second flare which started a month ago, has made me feel much slower and older! I think it’s cos of brick upon brick of last year with the kidney infections and 2 ops and then ongoing eye problems… it’ll pass, mustn’t grumble, and thank you so for asking. Hope you are okay too. 🌺🌺🌈

[Bcol]

Love the wreath it's beautiful. As Kendrew says looking at what is happening elsewhere does help to put our worries into perspective, even if doesn't make them any less at the time. Sounds like you've had a year full of stressful things. Hope you start to feel less frustrated soon.

[autumnlass in reply to Bcol]

Thank you Bicol. It has been a stressful 2 years but we all are family here with stuff that we share and respond so unconditionally, that we are fortunate. Let’s hope the people of Ukraine get their peace which the world waits for … meanwhile we think of them. ❤️🌈🌺

[Viv54]

I think so many of us are in this boat, but yes whats going on atm , makes you count your blessings, hope you feel better , lovely gesture x

[Pixix]

Beautiful wreath…I hadn’t thought of that..I make six every Christmas! There’s no point hanging something blue & yellow in a window here as our house can’t be seen from the road, but I could make something like that & put it on our front gate…thanks for the inspiration. S x

[Spirograph]

That’s really bonny and looks like the sun is shining too. Good luck with the ‘steadying’. 🙂

[Hidden]

That’s really lovely. Did you make it yourself?

[autumnlass in reply to Hidden]

I have done floristry courses and I love designing with flowers and foliage. So thank you! x

[PMRCanada]

I’ve been more sentimental and teary the last 4 years on pred, but it was more significant at higher doses (started at 20mg…currently tapering down to 7). My moods did used to include anger/frustration, but not so much for the last couple of years.

I have flared 5 or 6 times but was able to “catch it” early the last 4 times, so did a 10 day pred burst and was able to return back to 9mg where I was “stuck” for about 2 years. So I count myself fortunate that I haven’t really yo-yo’d.

My first flare was a “doozy” from tapering pred too quickly at advice of rheumy (caused me to go from 10mg back up to 20mg for 6 weeks). I’m now on methotrexate and able to lower 1mg every 6 weeks. So far so good, but early days yet with on-boarding methotrexate. Time will tell.

Flaring is not only physically painful, but it does take a toll on us mentally. I absolutely love your wreath in honour of the Ukrainian people who are in the biggest struggle of their lives. Thank you for honouring them in such a beautiful way!💙💛

[autumnlass in reply to PMRCanada]

Thank you for such an articulate and cogent answer to how you felt/feel on Prednisone. They echo my thoughts and feelings too very well.

This is really only my 2nd biggish flare since I developed PMR in July 2020. I had a challenging time with renal stones last year resulting in 2 ops, and now under eye clinic for ocular hypertension. I just feel a bit dilapidated at the moment but once some peace and sunshine are offered to us it will make us smile again hopefully. Thank you. X 🌈

[Nextoneplease]

“Dilapidated “ - love it - it’s pretty much how I feel too! I also have eye issues (double vision, long story) and am self isolating for ten days pending cataract surgery. Can’t not watch the news, feel I need to follow it, but oh, it’s awful isn’t it 🥺

Love your blue and yellow wreath - I might get out into the garden this weekend and see if I can do something xx

[autumnlass in reply to Nextoneplease]

Good Luck with the cataract op. My 2 were done in 2017 and have been a joy, although left eye is causing problems with pseudo exfoliation syndrome.

I cannot bear the news either … just flicking through Netflix to find some uplifting film. I need follow the News too and cannot believe what’s going on there. It’s just terrible. 😨. Take Care xx

[Flutterbies57]

I have been flaring too . Love your wreath . Thoughts of Ukraine make me buck up my ideas too . Extra prednisone makes me rage against Putin !

[autumnlass in reply to Flutterbies57]

Prednisone ceases the pain, but doesn’t erase the pain for this poor country. 🤬to him!

[Flutterbies57 in reply to autumnlass]

Sadly, it gives me the strength to forget about my woes which are so insignificant to their situation.

[autumnlass in reply to Flutterbies57]

Yes I know that’s how I feel too. ❤️🌈

[Whippetygirl]

That looks absolutely beautiful.

[autumnlass in reply to Whippetygirl]

Thank yi