I know this might sound crazy but I wondered if anyone else has the same thing. Since being diagnosed with PMR six years ago, I find if I shout or get cross, I am flooded for a few seconds with a horrid feeling that washes all over me me. Is it the Pred, or adrenalin or something? Really horrid from head to toe but it only lasts for a few seconds! Any thoughts gratefully received.
Adrenalin or Pred?: I know this might sound crazy... - PMRGCAuk
Adrenalin or Pred?
I get that even over a year after stopping Pred. My body seems to do an adrenaline rush if triggered by a mild fright like nearly tripping. It’s feels extreme but over in seconds. I am less calm too such as in the passenger seat of a car. Feels like the jangling effect of Pred has reset the body’s response to what it regards as peril.
Same as Snazzy. I'm the backseat driver nobody would want as a passenger.
I became cross the other day when my husband made an innocuous remark and I'm ashamed of my angry response. This happened a lot in the earlier days and it was impossible to control. I must have been awful to live with. After that last 'outburst' I calmed myself down with a few deep breaths and steady breathing then put it out of my mind. Fortunately, it's only my husband who's suffered this and he understands. The feeling at the time is horrible though.
Oh me too!!! Sometimes I hear myself snapping at my husband, or complaining about something or other, and I don’t recognise myself 😟
I’m glad I don’t get the Pred rage now; I’m just nervy.
You are relatively early into your journey so be assured that this Pred effect will lessen over time. It's comforting to know that others have or have had these side effects.Forgive yourself and keep your chin up. 🙂
Tears or temper may well be on my gravestone
Thank you all of your lovely people, for setting my mind at rest. xx
It doesn’t sound crazy at all. It’s our poor old bodies trying to produce an adequate adrenaline response after having been shut down for a long period. You describe it very eloquently. Perhaps it is helping us to be better people. Like those dog collars that shock barking dogs. Joking apart, I do think it’s normal. I am sure an Endocrinologist would agree, you might want to have a Synacthen Test or morning cortisol test to ensure that your adrenals have the capacity to work fully.ie if you are currently at a low dose ( under 5 mgs). I went on the 6 years in your post. Have you relapsed?
Thank-you for posting that. Your post gave me one of those moments of illumination when things fit into a jigsaw. I have had this feeling at times, more at the beginning of my PMR journey on the higher levels. First few times I was really frightened something very serious was happening. Now if I feel I am approaching the same sort of situation which would create an adrenaline rush I try and adopt relaxation techniques to ward it off. Not always successful but it helps to try! Loved your word "flooded" as it really explained what it felt like for me.
Oh Florrie - it's so good to know one is not alone on this journey. It's a horrid feeling and like you, I wondered if it was something really wrong, because it's a physical thing - not just emotional.
Oh yes, I get this on occasion. The last one was when we were on the M62 last week. I could see brake lights and I didn't think my partner who was driving had seen them. I was shouting stop, stop and totally panicked until I realised he had. I had to shut my eyes and breathe until it passed.
Total over reaction when a point and slow down would have done.
I have no idea if it's the pred or adrenaline but I'm looking forward to normal reactions in future!
I had something similar - and I'm pretty sure it was an impairment of distance perception with PMR because I'm sure it was there pre-pred. We had long drives down relatively narrow motorways with LOTS of HGVs in the inside lane. The Brenner from Innsbruck and especially the Italian border is particularly bad - it was like driving down a narrow tunnel and I hated it. Never been a problem before and is much better now
I used to get that - l always felt my husband was too close to the car in front & braked late - l felt like l was tipping forward. It was awful & he couldn’t understand it…..It did pass but know how you feel 😳