Constant bouts of Itching: I was diagnosed as to... - PMRGCAuk

PMRGCAuk

21,315 members40,423 posts

Constant bouts of Itching

apttony profile image
16 Replies

I was diagnosed as to having PMR just under 3 years ago. Currently reducing from 7.5mg /day to 7.0mg/day, using DSNS taper schedule, as I have had problems at this level before, and had to increase the dosage back up again.

For the last year or so, I have suffered with extreme bouts of itching, and taking antihistamine has little control over the reaction. I have read somewhere on PMRuk that some versions of Prednisolone have fillers in it, like sodium benzoate, which are high in histamine.

Does anybody have a definitive knowledge of which manufactured versions of Prednisolone do NOT contain sodium benzoate or maize starch, another common filler?

Written by
apttony profile image
apttony
To view profiles and participate in discussions please or .
Read more about...
16 Replies
jinasc profile image
jinasc

Can't help with the details you asked for, however someone will be along who will be able to help.

In the meantime, if you are taking enteric coated pred gently wash off the dye before taking. The colouring can cause problems like itching, red etc.

Sometimes if you have a ready meal which could be spag boll etc, then look at the dish you have heated it in and probably you will find a residue of colour generally a pale reddish.

Different manufacturers use different colouring agents, the contents are exactly the same.

Very timely post. I had "the itches" in two areas last week. Calf and hip. It was awful so I took a couple of knock out pills and spread some lip cream over the itchy area. Ta da it went as I fell asleep!

PMRpro profile image
PMRproAmbassador

Use your search engine to look up the various brands of pred applicable - the manufacturer's data sheet should list the ingredients including the fillers. It is possible that your local pharmacist may have access to them too

apttony profile image
apttony in reply toPMRpro

I have found a NICE listing of 11 manufacturers/suplliers of Pred, but so far only been able to find the excipient lists of 2 of them.

PMRpro profile image
PMRproAmbassador in reply toapttony

Try writing to the company

tangocharlie profile image
tangocharlie

I have this problem. I can take Strides Pharma or Wockhart OK, or Accord enteric coated tablets if I wash the coating off first and put them in a gel capsule. Accord Northstar brand has sodium benzoate in. But they all have different fillers. Putting any meds in a gel capsule which you can buy on amazon etc helps me with taking other types of meds too.

apttony profile image
apttony in reply totangocharlie

Hi tangocharlie. I'm on the same Strides Pharma and Wockhart, the latter has lactose, maize starch, stearic acid, purified talc and magnesium stearate in them. So far cannot find the Strides Pharma breakdown.

PMRpro profile image
PMRproAmbassador in reply toapttony

Interesting - I can't see pred listed on their site but have found a UK data sheet:

stridesfoundation.com/downl...

The excipients are listed in 6.1, almost a the end, last page but one,

apttony profile image
apttony in reply toPMRpro

Thank you PMRpro, now got it and downloaded the Strides Pharma list of excipients.

However you 2nd link is a bit confused and should be . . . . .

strides.com/pharmagenerics_...

Many thanks

PMRpro profile image
PMRproAmbassador in reply toapttony

I don't know what happened to that second link, there were actually 2 and one disappeared altogether. One was to the link you've given and the other to the contact page. But once it goes live you don't see what happened.

tangocharlie profile image
tangocharlie

There are a few of us on here have unusual 'allergies'. By detective work keeping a food and symptoms diary I discovered my main trigger is foods that are high in histamines - histamine intolerance. I have written posts on it on here about it. Still trying to find the root cause but it may be mast cell activation.

apttony profile image
apttony in reply totangocharlie

Yes, I have been exploring the histamine intolerance idea as well. recently found a mobile App which lists just about everything you can eat along with their histaamine content, highlighting those to avoid. As with most of these allergy intolerance problems, the things to avoid always seem to be the most enjoyable ones. !!!!!!! "Work in progress"

PMRpro profile image
PMRproAmbassador in reply toapttony

There is a theory held by some that the things we like best are ones that are bad for us ;)

apttony profile image
apttony in reply toPMRpro

Hmmmm! Typical!!!

😀

apttony profile image
apttony in reply totangocharlie

Hi again. I've had a look at some of your posts - wow! - so many. I'm not have as much of a problem/s as you seem to have suffered, so I count myself lucky. Just suffering from itching virtually all the time, except when I keep myself cold. So I'm not sure how many of your posts are relative to myself. Can you give me any pointers to particular posts?

tangocharlie profile image
tangocharlie in reply toapttony

These two might be useful:

Allergies to Pred

healthunlocked.com/pmrgcauk...

Histamine intolerance

healthunlocked.com/pmrgcauk...

Not what you're looking for?

You may also like...

Low Sodium when taking Prednisolone

Has anyone else found that they have low sodium which could be due to taking Prednisolone? I have...
JanetT58 profile image

Naproxen instead of Prednisolone

Has anyone else been told to come of steroids and take Naproxen instead? I have been told to reduce...
JanetT58 profile image

Uncontrollable itching

Hi. I have recently reduced my prednisolone to 3 mgs This has been a gradual reduction from 15...
Wraysbury profile image

Itching

Hi. Has anyone suffered from itching and rash when tapering down prednisolone. I have developed...
Caradomben profile image

Unexplained lack of PMR pains!

Hi, about 2weeks ago I broke my ankle , kitchen cabinet fell on it !! I had some good advice from...
Comben profile image

Moderation team

SophieMB profile image
SophieMBPartner

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.