Link to recording of Sara Muller's webinar

[Fran_Benson]

For those of you unable to attend Sara's webinar this morning or even if you'd like to watch it again, here's the link pmrgca.co.uk/content/pmrgca...

Fran

[DorsetLady PMRGCAuk volunteer]

Very interesting thanks.

Should be compulsory watching for some GPs and Rheumies - perhaps they would then realise it’s a lot more complicated than their initial thought, and that one size most definitely does not fit all.

[tangocharlie]

Very interesting Fran and Candy, I will watch it again to check a few points. This research will really help in many ways to help educate doctors that PMR doesn't miraculously disappear in 18 mths to 2 years as their textbooks say. Also there are different sub-types and the fact that 'things were messy' indicates that every case is different. I also got my paper copy of the PMRGCAuk questionnaire through at the weekend so will fill that in and return - we need to know the facts from the front-line so we can fight for better treatment of these diseases. I've also just donated £20 - which is a key part of PMRGCA week, raising funds to help research and support. Two very good informative lectures, thank you again.

[Fran_Benson Partner in reply to tangocharlie]

Thank you - and for the donation!

And yes please, do fill in and return the questionnaire.

Fran

[Grammy80]

Thanks so much Fran!!!

[Thelmarina]

I’d just like to thank you and Candy for setting up these two seminars. I found them reassuring and inspiring with a lot of hope for the future understanding of this illness and it’s treatment. Brilliant!

[Fran_Benson Partner in reply to Thelmarina]

You're very welcome. I've messaged you about a couple of things too - if you check your messages and get back to me that would be great. Fran