I have GCA diagnosed since 4 months.
I am on Actemra 162 mg subcutaneous since a month.
I am also on 30 mg prednisone currently though have stepped down from 60 mg over last three months.
On advice from some of the well- informed people here, I have been testing for my ESR and CRP which had settled down to normal immediately after I started the pred 60 mg dose 3 months ago and the ESR and CRP remains normal even now .
A month ago I started the Actemra injections and have tested my IL6 levels since then.
However what I find is that the IL6 levels are continuously rising - 162,183,264......
The normal range is between 2-7.
What could this indicate ?
Also I am not on any other steroid sparing drug ,only on Actemra and continuously stepping down on the prednisone.
Am very keen to seek opinions on this platform about this.
Also whether anyone could recommend any expert who could opine on this outcome ?