Prednisone user need some advices

[Opename]

Hello.I have been on prednisone for about 3 years 10 mg daily for Hepatitis Autoimmune and I need some advices how to cut adverse reactions .Thanx ,Lord Jesus Christ be with you !

[GOOD_GRIEF]

Not that you aren't welcome here, openname, but given that your autoimmune condition is quite different from ours, I think you'd do better on a site more focused on your particular diagnosis. Very few of us have any kidney issues, and that might be a very significant difference between how we use pred and how you use pred.

Wishing you well...

[Opename in reply to GOOD_GRIEF]

Thanx for advice I appreciate answer hepatitis it’s about liver I’m gonna wait maybe someone will know something

[PMRpro Ambassador]

I'm far from clear as to what you want to know. What adverse reactions? After 3 years you must know what problems you have. Everyone is different.

[Opename in reply to PMRpro]

In 3 years I had many bad reactions adverse but I’m wondering if you can develop heart problems?

[PMRpro Ambassador in reply to Opename]

I have heart problems, atrial fibrillation in particular, but it isn't due to the pred, it is due to the autoimmune component of my illness. Pred can cause tachycardia (fast heart rate) and raised BP. I don't know what age you are - the people on this forum are all over 50, advancing age is almost inevitably accompanied by the development of various things involving the heart.

[Opename in reply to PMRpro]

I’m 20+ how bad is salt with prednisone ?You took long term Pred ?

[PMRpro Ambassador in reply to Opename]

I've been on pred for well over 9 years. Salt tends to cause fluid retention anyway and pred tends to make the effect worse.

You really should speak to your doctors about anything you are worried about and think is due to pred. Weight gain and delicate skin etc are things we as patients can make suggestions for but anything systemic needs medical input.

[Opename in reply to PMRpro]

Do you use salt in your food ? There is something for fast heart rate ?because I have this adverse reaction

[PMRpro Ambassador in reply to Opename]

Only the salt that is in the Herbes de Provence mix I use for salads and roast veggies. I eat almost no processed food - sneak the occasional crisp/potato chip from OH but not often!

[Opename in reply to PMRpro]

You know why I’m asking a prednisone user because you know having experience 9 years doctors just learn from books

[Opename in reply to Opename]

You feel the pain ... You know what I’m mean

[PMRpro Ambassador in reply to Opename]

And they also learn from patients presenting with those side effects!

[Opename in reply to PMRpro]

I want to ask my doctor lower my dosage from 10 mg at 7.5 mg do you think I will have bad side effect ?Now I have rapid heart rate

[joat in reply to Opename]

I was diagnosed with chronic active hepatitis (autoimmune) twenty years ago. Put on Pred and tapered slowly, came off entirely after three years. Had fatigue but no other side effects. Clear now but have GCA.

[Opename in reply to joat]

Thank you .how you feel with your hepatitis?

[joat in reply to Opename]

Fine as it has been in remission for fifteen years.

[Opename in reply to joat]

Do you remember how you tapered ?

[joat in reply to Opename]

Sorry can`t remember except that I did it according to the Consultant`s instructions.

[Opename in reply to joat]

Thanks

[HeronNS]

This is a really good description of how to safely taper prednisone to the best lowest dose which works for you.

cssassociation.org/patient-...