Welcome to PMRGCAuk on HealthUnlocked. Here are some guidelines on posting and discussion - revised and updated

[Polywotsit]

Welcome to the PMRGCAuk Community!

We’re very glad you have chosen to be a part of our community. The PMRGCAuk HU community, offered by PMRGCAuk and HealthUnlocked (HU) - supports people affected by Polymyalgia Rheumatica (PMR) and Giant Cell Arteritis (GCA) to manage their condition better. We hope this community is a safe and supportive place for you to share your experiences and find information and support.

This community is moderated by PMRGCAuk and HealthUnlocked.

Here are our Community Guidelines, which are aimed at creating and maintaining a safe and supportive community for all of our members. Many of HU’s guidelines are repeated here.

Posting Content (Posts/Questions/Replies/Private Messages):

1.Content posted by individual members should not be taken to represent the views of PMRGCAuk or HealthUnlocked.

2.You are encouraged to post content about your own experience with being a patient or partner/caregiver, ask questions, and offer support and advice. Posting content on this community is taken as your agreement to post information that is true and accurate to the best of your knowledge.

3. Please try to keep content relevant. Although this is a friendly community, the focus is on living with PMR and GCA. It isn’t a general social networking site, but part of the work of the charity. As moderation and administration uses charity resources, it’s important that we keep the focus. Members may be contacted by administrator or moderators to request co-operation with this guideline.

4. If you post a link to your own blog or website, we may turn off replying to your post on the forum. This will have the advantage of encouraging people to navigate to your site and avoid the development of long discussion threads which may not be pertinent to the forum.

5. Content should not be abusive, derogatory, sexually explicit or suggestive, or deliberately misleading.

6. If you believe someone else’s content violates this principle, please report it via the “Report” option. Use the dropdown menu to select the reason why you are reporting the content. Content that is felt to violate this policy may either be edited or removed. Reports are read by PMRGCAuk moderators and it is their judgment on what action, if any, is taken. More often than not the issue will be dealt with via private messaging.

7. Neither PMRGCAuk nor HealthUnlocked is responsible for any offence or injury that a member may draw from another member’s content.

Any content posted on this community can be read, used, reproduced, and cited by other users of the site, within the site. Please refrain from sharing other members' posts on the web outside the site. You have the option to delete content you posted.

When you post third-party information, such as information about new treatments, you are asked to provide references and links to sources wherever possible. Please ensure links are to a reputable site.

Professional Health Information:

The PMRGCAuk Community strives to provide useful, up-to-date information on matters of concern to individuals affected by PMR and/or GCA. The information posted on this site should not be used as a means of diagnosis, determining treatment, nor replace the relationship between you, your doctors and other healthcare professionals. For diagnosis and treatment options, you are urged to consult your physician.

Community Atmosphere:

The PMRGCAuk Community is a safe, supportive, informative, and friendly community for patients, their partners and carers. Your participation in this community should be with respect and honesty, and in the spirit of supporting and learning from fellow users.

Please note that while PMRGCAuk is an organization based in the United Kingdom, members may be located worldwide. As such, details on approved medications, treatment protocols, healthcare, insurance, and other related topics may differ and should always be verified depending on your specific location.

Moderating Content:

Content posted on this community is moderated by PMRGCAuk volunteers and HealthUnlocked. Moderation occurs only after content is posted.

Moderation helps maintain a safe, positive environment for all members of the community. Content may be edited or removed to ensure that the community remains supportive and responsive for all members.

The community is open 24 hours a day, 7 days a week. Moderation occurs after posting and primarily between the hours of 9 AM and 5 PM GMT.

Solicitations:

Please note that PMRGCAuk does not endorse or recommend any specific products, services, therapies, or activities mentioned by any third party (individual or company).

Advertising of commercial services or products is discouraged. However, this should not stop members from recommending products or services that they have found useful or helpful in managing their condition.

Online Safety:

In this community, there may be discussions of health-related issues and sharing of personal information.

Please note that the PMRGCAuk Community is an open site, meaning that any posts are searchable by internet search engines and can be shared via social media platforms. If you would rather your content was not searchable or shareable, you can select the visibility status of your post as visible to “Only followers in my community” before you click submit.

For your own safety, you should not disclose personal information such as your full name, email address, home address, telephone number, or any other information which could directly or indirectly identify you. If you wish to do so, please use the private messaging (chat) function.

support.healthunlocked.com/...

The PMRGCAuk community is part of HealthUnlocked, a network of over 200 conditions and wellness communities from organizations you know and trust. By using HealthUnlocked (HU) you are accepting these posting guidelines and agree to HealthUnlocked’s site Guidelines and Terms of Use. Members of this community should read HU’s Guidelines in conjunction with the PMRGCAuk community guidelines outlined above.

HU Community Guidelines: support.healthunlocked.com/...

HU Terms of Use: healthunlocked.com/policies...