This doesn't seem right!: I last wrote about... - PMRGCAuk

PMRGCAuk

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This doesn't seem right!

AltonBay profile image
11 Replies

I last wrote about a reduction in my prednisone ordered by my doctor. She wanted me to tapper from tenmg to 5mg. I was new to the group and had been reading the posts for about a month at that time and had learned a lot!

You as, a group stepped up and advised No Way! Find a rheumatologist!

I requested a referral and this past week I met with her. She spent nearly two hours with me examining, questioning, explaining, giving exercise suggestions, diet etc. I was sent home with a review of our meeting, exercises, future steps, information about PMR/GCA and on and on (20 pages worth!)

She ordered a bone scan and an exam for detached retina. Have had flashes recently. I will see her again in June.

This is a thank you to the group for being all that you are!

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AltonBay profile image
AltonBay
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11 Replies
SheffieldJane profile image
SheffieldJane

That’s fabulous AltonBay. Well done for taking charge of your illness. Stick with us.

jinasc profile image
jinasc

Yes, they are all so helpful and you learn and, as always, knowledge is power.

WOW! Sounds like you found a "good" one!!!!!!

Wow 2 hours, that's great. I have never got more than 10 minutes at a time with my rheumatologist even on the first visit when I was diagnosed with GCA and PMR. You have got a good one there. Good luck AltonBay!

Jackoh profile image
Jackoh

Hang onto her!!

DianeA1 profile image
DianeA1

Hi AltonBay,

That is so good that you found a rheumie you can trust. Good on ya!

My 10 min dr visit is about all i need bcuz of what i have learned here. We get to the point quickly and understand one another.

Thank you all!!

karools16 profile image
karools16

clone her!

PMRpro profile image
PMRproAmbassador

And what dose of pred?

AltonBay profile image
AltonBay in reply toPMRpro

Now at 10mg, will go to 9 after eye exam.

PMRpro profile image
PMRproAmbassador in reply toAltonBay

Which sounds FAR more realistic. I do hope your GP takes the learning experience seriously...

Mstiles profile image
Mstiles

Good for you! Sounds like you found a good one!, wow, 2 hours with the rheumatologist! I was diagnosed with GCA over the phone and upped to 40 mg pred, (over the phone, )after an initial appointment diagnosing GCA/PMR. No tests other than sed rate, CPR.

Still searching for a good rheumy.

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