Fatigue

[Cashewnutty1962]

hi all

I’m have reduced the steroid dose from 5mgs to 4.5mgs now on day 4. Fatigue!!! My life!! I could happily go to bed at 7pm… This is my 3rd attempt at getting below 5mgs. I will persevere especially as the weather is getting warmer and I no longer have the stress and irritation from work.

[Phoebenooby]

try 4.75?

[Cashewnutty1962 in reply to Phoebenooby]

Hmm never thought of that!! If I’m still so tired, I will try that…thank you very much.

[Phoebenooby in reply to Cashewnutty1962]

If you feel really rubbish go back up to 5 for a few days then try 4.75mg, I ve done that and have now got down to 4mg (3 days! ) 🤞🏻

[Cashewnutty1962 in reply to Phoebenooby]

👌🏽

[PMRpro Ambassador]

This is a stage you have to weather to be able to get off pred - it can last a while or you might catch up after a few weeks but this is the point where you need tiny steps down and long gaps between. And sticking power.

[Cashewnutty1962 in reply to PMRpro]

I guess so.. Rheumatologist wants 1mg reduction every month!! He can wish!! It’s down at stages I decide😂

[DorsetLady PMRGCAuk volunteer]

Some info on adrenals -and the only way to get thought is very slow taper, small drops down , time , rest when you need to and patience, lots of patience….

healthunlocked.com/pmrgcauk...

Would also suggest you return to 5mg, stay there for a couple of months to give adrenals time to catch up, and then reduce very slowly.

[Cashewnutty1962 in reply to DorsetLady]

Hi, I was on 5mgs for about 2 months. Apart from fatigue on 4.5mgs, feel ok, not too much aching as I’m taking it easy… may go up to 4.75 if start to get discomfort.

Thank you