I have posted a couple of times recently and found the support & advice unbelievably helpful for our family, thank you.
One last plea for help,
I have just been with my farther when his condition attacked him for over one hour. During this I watched him with anger while he sang and sang (Nursery rhymes) through the pain he was in!! This has been a regular occurrence now for the last three months, with then only let up being when he was given 500mg intrusion of methylprednisolone for two days over two weeks ago. After this he was instructed to continue with the 10mg pred and pain killers.
Couple of points, my understanding is that the methlpred 500mg is approximately 45mg of pred? Based on the fact he was the miracle person for 48 hours it worked, by reducing to 10mg of Ped the next day would not be a good idea under PMR / GCA treatment? This would be consistent with how he is at the moment. As I have said before I believe that he would have half a chance on 20mg trial reducing slowly and I am strongly advising time to try this at the moment to ease the pain?
We have a specialist appointment on Monday, a follow up from CT/Blood tests taken four weeks ago! is there any useful questions we should consider that could push the specialist into confirming why we are not trying a stronger steroid? Watching him tonight was as many of you will know heart-breaking, my concern now is his mental condition as dealing with pain for so long will take a toll on any one and some of his actions tonight did not seem like my farther. I understand that this condition is complicated and has highs and lows, however we seem to have had four high days in the last 6 months
Thanks again for your support, big day Monday