I was diagnosed with pmr just over a year ago. I started om 15mg of predisolone. Everything fine until a reached 7mg last DecemberI got stuck there but Dr said I must reduce 1mg a month so went down to 6mg but had fatigue/tiredness although only a few aches but went back up to 7mg. Saw Rhuemy in March and whe I told him how tired and depressed I got he said it couldn't be pmr and, because I'd had vit D and thyroid tests which were ok, he said It couldn't be the pmr but must have some hormonal problem and to come down 1/2mg a month and come back in 4 months time in which time he'd expect me to be on 5 or 5 1/2mg. As I've reduced my dose I have become more and more tired and depressed and sometimes feel I just can't go on although still only a few aches and pains. My body does sometimes feel like wood! I go back to Rhuemy on Monday and feel quite anxious about what he will say. I am down to 5 1/2mg. The lower I get the more tired/depressed I get. I just don't know what I am going to say to him.
Does anyone have experience of the dreadful fatigue and tiredness because of Pred reduction rather than severe aches and pains?
I've never posted before but hope someone out there will have some comments about how I feel before I go on Monday to Rhuemy. My ESP is 4 CPR 5 so that seems normal.