Saw my rheumy this week for an update, been suffering a bit ever since I got down to 12mg of pred and foolishly tried to go down to 11mg about a month ago. Anyway after a very good discussion/review we agreed that I should stop taking the hydroxychloriquine and increase my steroids. So now back up to my starting position 3 years ago of 15mg!
He did say he thought it would be wise now to have s bone density scan and will arrange for that to be done soon. My CRP was 10 by the way, so still showing some inflammation.
Generally I’m feeling better, no pred fog and the can’t be assed attitude seems to have moved on. It’s just the pain in my hips and shoulders along with very poor sleep that bug me. Let’s hope the new regime helps. I do think the losing weight and now trying to not eat too many carbs has helped and I’m sticking to that. I have to now as I threw out all my over sized clothes😜
Started messing around with wood a bit more lately and setting my garage up as a bit of a workshop. Really enjoying this and it’s something I can pick up and put down as I want. The photo is of the large project, for me, I undertook for my grandchildren.