Still not sure if I have PMR but GP is assuming I have. Have an appt with Rheumy in a couple of weeks for confirmation. I wonder what your collective wisdom on my 'case' is?
I'm male and 52 - so atypical candidate for PMR.
A couple of weeks before Christmas I had a stiff neck which was so bad in the mornings that I had to use my hands to lift my head off the pillow. About the same time I found I couldn't lifet my legs to put my socks on, and I had to lift my right leg into the car as if it was a false one!
GP said the two things were separate and gave me a month's supply of naproxen. The neck improved very quickly but the legs didn't. I also started getting night sweats and lost a bit of weight so when I saw the GP a month later I was sent for blood tests, MRI and CT. CRP was about 50. Cancer was ruled out by CT, and (inconsistent with PMR) the MRI revealed some inflamation in the lower lumbar facet joints and some nerve root damage. GP thought it might be some sort of infection so put me on augmentin for 2 weeks while continuing Naproxen. CRP went down to 17 but this didn't indicate whether it was the anti-inflammatory of the antibiotic which was helping. So, they stopped the naproxen and carried on with the augmentin for another 2 weeks. The CRP had increased to 27 so the assumption was that it must have been the naproxen rather than the augmentin which had been helping. Meanwhile, having stopped the naproxen, I had started aching in my neck, back, buttocks, shoulders, and my legs had got worse. It was all worse in the mornings and after sitting for any length of time. Picking stuff off the floor, getting dressed, getting in and out of chairs was all an effort, also, apparently, I had started walking like someone in need of a hip replacement! .I felt very old! Basically, with the help of this forum and other online resources, I wondered if I might have PMR. I suggested this to the GP last week and she agreed, although she said what they had seen on the MRI didn't really fit with PMR and there was still a chance it could be a specific infection which the general antibiotic hadn't 'reached'. Anyway, she put me on 15mg prednisolone and after a couple of days I feel so much better. Still a bit achy after sitting and first thing in the morning; and I still have to lift my leg into the car; but otherwise, hardly any aching, and much more energy.
Sorry - I went on longer than I had expected, but it has taken 3 months to get to this stage and it's quite a long story!
Just thought I'd introduce myself and wondered if you would agree with the PMR diagnosis?