I was diagnosed with GCA in May 14 (having suffered with classic symptoms since January) and have reduced from 60 mg per day to 3 mg per day. When I saw the Rheumatologist in September 15 I mentioned that my CRP readings had been slowly rising this year (24 in August and a higher reading in September-they didn't say how high). He referred me for a PET scan which I had in October 15. This showed inflammation in my Aorta and I have been told to go back up to 40 mg per day. I was offered Methotrexate to take along side the steroids but had heard about the side effects so decided against it. I am wondering now whether I should have gone for Methotrexate as the Registrar said it could mean I might come off the steroids 6 months earlier. Have people had good results with Methotrexate?
It is worrying to have to go back up 40 mg having got down to 3 mg, as I felt ok in myself. When (if!) I get off steroids, how will I tell if the inflammation has come back again if I don't get symptoms? Does this mean blood tests for life? My GP hadn't been particularly bothered about my CRP levels but I am her first GCA patient.
Thanks in anticipation.