Hi as many of you know I am 48 and have Atypical PMR. Since March this year have increasing number of GCA symptoms: burning temples, jaw cramping. Tongue tingling. More recently I have developed a pulsatile tinnitus, which GP says suggests there is problem with the blood flow in the carotid artery. I Also now have pain along the line of my glasses and tender areas on my scalp. The good news is that my current Rheumy has at last accepted I have symptoms of temple arteritis and is arranging a biopsy, she is still skeptical because my bloods are normal. As I expect the biopsy to be negative after 10 months on steroids I would like to take evidence that GCA can occur with normal bloods to my next appointment. If anyone has any info that would help id be very greatful. I had asked for a referral to a new Rheumy as current one wasn't listening, but do not see her till end of November. Ism starting to think there is light at the end of the tunnel, and that these symptoms may be treated. Take care everyone, Runrig
Last edited by runrig01
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