Me and - this time not - my gp.

[Zofitmogelijk]

Good afternoon my dear colleques.Some of you may remember my post 2 months ago after my gp wanted me of Pred within 8 weeks , from 7,5 Mg to zero. You gave me lots of Good advice, so I decided to do it my OWN way and asked for a second opinion. Finally I saw an unknown rheumy today and since beeing rather nervous I had written my arguments down to taper slowly ( Thanks to this priceless forum) And quess what she agreed with me and now I can take the time I need to go to zero ( I hope) and on top of that she, the rheumy, offered to take over from gp! So yes don't hesitate when you feel not treated in a way that you and your body need, take heart and go on and on till you get what you need. So today I am happy and content. Love you , Aletta

[markbenjamin57]

That's great news Aletta, I am so happy for you!

Best wishes

MB

[Zofitmogelijk in reply to markbenjamin57]

Thank you dear 'uncle' and best wishes for you

[markbenjamin57 in reply to Zofitmogelijk]

Ah, bless you Aletta.

Maybe The Man from U.n.c.l.e...? (my favourite 1960's American TV detective series)

MB

[Zofitmogelijk in reply to markbenjamin57]

We did not yet have a tv set in those days. The first series I remember are absolutely fabulous and gardeners world. Sorry

[markbenjamin57 in reply to Zofitmogelijk]

Ah, the BBC's 'Ab Fab' and GW are still favourites with many UK TV audiences too!

[Zofitmogelijk in reply to markbenjamin57]

Proves the quality of the programs and in 16 minutes I will watch GW although I still miss Geoffrey Hamilton

[markbenjamin57 in reply to Zofitmogelijk]

Ah, yes, 'Geoff'! I remember him well, he was the gardeners' Guru!

Happy watching..

[Rocketronzy]

👍👍

[PMRpro Ambassador]

That is terrific news Aletta! It does pay to stand your ground - and I hope your journey with this rheumy is a smooth one.

[Zofitmogelijk in reply to PMRpro]

Yes Thank you PMRpro,she really listens and even more important the lady knows what she is talking about. I do not expect the gp frustration with her.

[SheffieldJane]

Oh well done Aletta you really took charge!🌟

[Nitrobunny]

Yay!!! There's nothing better than truly being heard. Continued success and healing 💜

[Zofitmogelijk in reply to Nitrobunny]

Yes that is so true, and considering this enigmatic disease as un uninvited quest for me it is important to

Learn to deal with it

In my own way.

[Patience_1]

That's good news Aletta - what a relief not to have a battle with the medics in addition to the pmr!

[Rocketronzy]

Very strange thing drugs we all react differently

[Jackoh]

So pleased for you. Makes such a difference if you feel the medic understands and listens. All best wishes on your future ( slow) tapering!!

[Zofitmogelijk in reply to Jackoh]

thanks Jackoh, just been reading your post coated/uncoated pred ppi's and so on. Medics are not always that helpfull. But we learn from each other. I fill empty enteric coated capsules myself with pred, excactly the amount I need, so I am kind of selfsupporting. No PPI's for me. Good luck with your journey.

[Hollyseden]

Another post with great news today 👏👏👏 delighted g for you

[Jackoh]

What comforting news and has obviously put your mind at rest! All the best for a taper that suits you and is successful!! Xxjackie