Sorry for the length of this but I have joined this community on behalf of my mum who was diagnosed with temporal arteritis in January. For some time she had been complaining of a feeling of pressure in her head and lethargy but didn't feel her GP would be able to do anything, it wasn't until she started to complain of pain down the side of her face that she agreed to visit the surgery. We saw a locum GP who said she had an ear infection and gave her a course of antibiotics but they didn't help so we returned on New Year's Eve and this time saw a regular GP he confirmed the infection had cleared up and he suggested a blood test for a condition that causes inflammation in the veins, an appointment was made for 2 days time but unfortunately the next day mum had a bad fall hitting her head badly on a wall and she needed to go to hospital to have it stitched.
A week later mum complained of blurred vision so the next day I took her to eye casualty thinking it might be a bleed from the fall, they did lots of tests including a CT scan which was clear but they said abnormalities had shown up in her blood and wanted to start high dose 60mg of steroids immediately and she would need to come back for a biopsy which confirmed the condition.
Mum has since had both eyes lasered but her vision has not returned she says one eye feels like it has a film across it and the other is foggy she can see shapes and colours but not detail an optician says specs will not help, mum lives alone but we are having to stay with her most of the time as there is very little she can do for herself, her mobility is bad due to her age and arthritis in her knees.
The GP is reducing the steroids we are down to 30mg but they are having adverse side effects mum is extremely anxious, depressed and has been having severe mental disturbances consequently she has been put on diazapam to calm her.
The hospital consultant seemed confused as to why she had lost vision in both eyes and said she would get some sight back after the laser treatment (mum previously had cataracts removed from both eyes we knew that one had since clouded over) but she didn't and we are not due to see him again for another month, apart from the optician no-one has told us if her sight loss is permanent because if it is clearly she cannot stay on her own and will have to come to live with me, I have read that vision loss can be permanent but usually in just one eye but also that vision has returned for some after a couple of months.
Any support or advice anyone can offer will be helpful, it is so sad as everything has been taken away from mum she can't see the TV, she can't read, she can't knit all she has now is the radio.