Firstly I trust everyone has enjoyed the Christmas & New Year festivities.
This time I went into the meeting feeling buoyed up by the news that all blood tests were normal ( for me, that is!), BP was 126/85 with pulse of 56, I have LOST one kilo in the last month AND I am down to 6mg Pred.
I asked whether all the aches & pains were due to Pred withdrawl or from PMR and was answered with:-"Because the biopsy in April was of too small a sample and because I had already been on 50mg Pred for a week it was like looking into muddy water. The fact that blood tests have been similar for the last 8+ months has added to the puzzle. There is still no clear diagnosis but I can offer you a Cortisone injection for your left shoulder, which seems most affected."
I accepted both the injection offer and the advice to slow down to 1mg per month reduction.
Although I have had a fairly uneventful slide down from 15mg I still have problems with most arm & leg muscles & tendons as well as the ever-present lower-back pain, have puffy eyes,a moon-face and skin that marks without me being aware of it. I seem to have left behind quite a few other side-effects so not all is bad!