I got to see a rheumy dr for the first time today due to a cancellation. She was very down to earth and to the point. I have PMR. No doubt in her mind, as I have classic symptoms and the normal quick reaction to Prednisone. I was on & off Prednisone twice before the past three months, going back on this time at 20mg a day for 10 days and now 10 mg for 10 days ending tomorrow. She wants me to continue at 10mg and do a very slow decrease of 1mg a month unless I have flare ups then go back to the previous month dose. Her goal is to get me off of it or at least to the lowest dose I can take and still manage the pain. Does this sound right to you veterans? She felt the going off & on was the worst thing to do, but with mixed opinions from doctors I was seeing she gets how that could happen. She felt my blood work was elevated, but said she doesn't use that alone for a diagnosis. I really like this dr and was so relieved to have an answer and not have to go through tons more tests at my own expense! I feel I have learned so much from this group and just wish there was more local support here in the USA. The rheumy dr told me it isn't a common condition here in our area and our unreported data makes it hard to have connections to others that suffer. Thanks to all who have replied to my past posts. All advice has been so great!
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