I have had PMR for 9 yrs, most of the time I have managed my symptoms ok. Over the last six months I have experienced acute finger and wrist pain which is quite debilitating. Today I had my first face to face with a rheumatologist for five years !! I explained I was experiencing a bad flare which had lasted well over a month and told him of my hand condition…… I was somewhat taken aback when his advice was to reduce my present dose of 5mg (which is not effective) down to 4 mg.
I asked him to explain his reasoning, he explained that my body made 3.5 mg itself, so with 5 I was really having 8.5 daily….. I was so shocked I was lost for words… he then agreed to me having a blood test….. his parting words were, stay on 5 if you have to and he will get back to me after blood tests.
I was so annoyed, upset and feeling cast aside I sat back in the waiting room and cried…
When is PMR going to be taken seriously?