Hi I'm new here. I'll start with some background and I apologise as this may be long winded.
I came into contact with my long lost father 2yrs ago now. I was over the moon to find him but he had some sad news to tell me. My father has pkd and his father had it too.
I have for the past 5yrs or so suffered from recurring uti's/kidney infections. They have been more frequent this past 3yrs I would say. This year I suffered a bad uti that required a 3 week course of antibiotics. I have never had an infection like it. The pain in my right side was the worst and constantly going to the toilet.
Rewind 2 months ago when I had an ultrasound due to the pain. My results showed a fatty liver, my left kidney was OK but there where not able to see the right kidney properly. Everything else was OK too.
For the past 3 months or so I have been suffering from constant pain in my right side and back, just below the ribs. The pain will occasionally radiate to my right shoulder. I also have occasional pain under my left ribs but this isn't as intense as on the right side. I also have to pee more than usual and sometimes get a pain in my right side if I really need to go. I am tired all the time and don't have much of an appetite. My stomach is always bloated and when i get my period the pain gets worst in my side!
I've had full blood count and urine tests. My GFR 60. Urine test had 1-10 per cmm pus cells.
God i sound like a right moan bag!!
So my gp referred me to a genetic specialist. I have an appointment for the 6th October to have a genetic blood test done. I am so scared not for myself but for my two children.
I no the results can take anything from 2 months onwards to come back. I am trying to stay positive but I no my body and I just don't feel right. Maybe its just playing on my mind too much and I'm being silly.