Hemorraging Cysts: My left kidney is... - PKD Charity for A...

PKD Charity for Autosomal Dominant PKD

1,167 members263 posts

Hemorraging Cysts

my4yorkies profile image
10 Replies

My left kidney is filled with cysts. I was told one hemmorraged, if I didn't pass the blood in my urine where did it go? I also have them in my right. How often should I get an ulttasound of my kidneys? My Nephro says as long as blood work is okay, but 2 yrs showed protein in urine.

Lisa

Written by
my4yorkies profile image
my4yorkies
To view profiles and participate in discussions please or .
Read more about...
10 Replies
cmcginily profile image
cmcginily

Hello there, I also have multiple cysts in both kidneys and in my liver due to Polycystic Kidney disease. I have had one episode of bleeding into a cyst the blood remains within the cyst unless it bursts then it would show in your urine. The best thing you can do is maintain good blood pressure control and avoid anti inflammatory medications such as Ibuprofen, Diclofenac, Voltarol as they can affect your kidneys very badly. Drink plenty of water every day to remain well hydrated if your urine is dark in colour drink more!! Good luck and if you need any more info let me know

Christine x

my4yorkies profile image
my4yorkies in reply tocmcginily

Thanks a lot Christine! I only take Tylenol anyway because I also have Epilepsy, Lupus, Fibromyalgia and a few more health problems. I do drink plenty of water. I am having a problem right now with my bladder. I am not having a steady stream of urine even though I have the urge to go. I sit there for minutes until I think I am done and then another little bit more. I have seen a Urogynecologist and I go back in 2 weeks even though this has been going on now for over 2 months and get a cystoscopy. My last appt. with them I gave a urine sample and they catherized me and I still had some urine in my bladder. Does your stomach look big like you are pregnant and you get pains in your flank area and are uncomfortable?

cmcginily profile image
cmcginily in reply tomy4yorkies

My tummy is increasing in size, my Dad had a really big tummy due to the cysts too. Yes I have constant pain in the flank area worse on the right than the left. It feels like a nagging deep ache or cramp I find heat helps, I also use a tens machine at work to keep me going. I also get restless legs especially in the evening and have found tonic water helps with this. Hope all goes well with your cystoscopy and other health problems. I am in remission from breast cancer 2 years ago.

PKDC-Admin profile image
PKDC-AdminPartner

Sometimes cysts can burst and then you might see blood in your urine.

Ultrasounds are only usually required if there is a clinical reason, for example a cyst infection or a cyst causing pain that might need aspiration.

my4yorkies profile image
my4yorkies in reply toPKDC-Admin

So, then I might not always see blood in my urine if a cyst has hemorrhaged? How often should you get CT scans on your kidneys? I have not had one since I was diagnosed in 2005. The only reason I know about all the other thins is because I have herniated disks, bulging disks, and a lot of other problems and they caught this on my MRI of the back. Thank you! Lisa

PKDC-Admin profile image
PKDC-AdminPartner in reply tomy4yorkies

I am not a doctor but I don't think you always see blood in the urine. Sometimes it's microscopic. It may also just seep away into your body, like when you get a bruise.

Usually CT scans are used to diagnose an issue or identify something that can be treated, rather than part of routine care. There's no need to have one unless necessary.

I've only had one scan in 40 years of PKD.

Veryworried41 profile image
Veryworried41 in reply toPKDC-Admin

I am so encouraged by what you just said about having pkd for 40 years.Would you be willing to let me know how old you were then?What you've been doing health wise,what you eat and how you've coped with it pshhcologically because I have been having problems dealing with it in my head.I think about it almost all the time.I am hungry but scared to eat.I am 41 now just diagnosed and scared.Always wondering about how much time I have left.

my4yorkies profile image
my4yorkies

Thank you very much for your response! Have a nice day!

jajaja profile image
jajaja

The cysts fill up with fluid because there is no way out. So if there is bleeding, there is no guarantee that the blood will get to the urinary system. Blood may stay in the cyst. The cyst may burst and lead to bleeding into the cyst's surroundings. That might be part of the urinary drainage system, or it might not.

The simple test for whether or not a scan is needed is whether its results might lead to a change in treatment. As we don't have many treatments aimed at our cysts. we generally don't need many scans.

jajaja profile image
jajaja

... and protein in your urine (which many of us have) usually shows there is old damage. If the amount of protein is not getting worse then the damage is not getting worse.

Not what you're looking for?

You may also like...

Hundreds of cysts & enlarged kidney

Hi, I'm new on here. I had an ultrasound around 4 years ago for a hiatus hernia. Sonographer was...
Jerseyladu profile image

First Box Down

Today is i complete my first box of Jynarque, my last blood work and urine came back excellent! My...

Panic mode

Hi I'm new to this I was diagnosed 17 years ago been relatively fit and well apart from an...
Lynn-57 profile image

Kidney Infection

Hello everyone I've only just joined this group... I found it by accident when researching...
shazossie61 profile image

Recently discovered cysts on kidneys and liver during CAT scan for fibroids.

Hi all during a recent CAt scan to check for fibroids.The doctors discovered that I had a lot of...

Moderation team

Susan_101 profile image
Susan_101Moderator
PKDC-Admin profile image
PKDC-AdminPartner

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.