Hi everyone hope you're having a good day,
I have been having pelvic problems for so long....approximately 10 years of slowly progressively getting worse pelvic pain. I broke down 6 years ago and forced my go to give me an ultrasound after years of "oh it's normal here have some painkillers". They found a big cyst on my ovary which burst the day before my surgery was booked resulting in me having now only a left ovary. From that point I thought naively I'd get better and that the pain would be behind me. If only!! It got worse much worse. Now it hurt 24/7 on period when I'm off period it still felt as though I was on! I couldn't run, excercise, dancing would kill me with sharp pains to my pelvis as punishment for doing anything! So two years ago I went though such a long process and found a specialist in endometriosis. They found some endo and cut it out but the pain is still here and now I can't even move around without painful repercussions. I have painful period pains all round not just when I'm on! such pelvic pain I cannot move and it goes to my upper thighs, the pain makes me sick and lack of appetite as a result.
I went to see a bowel specialist this week dur to the lack of appetite and nausea though I know it's from the constant pain, and all he could say was that my endometriosis that was cut out was not that bad not so much, so the pain is made up in my head ......it is honestly the hardest thing to hear when I know it's not true and after years of pain hearing that makes me so sad and lost. Plus only I can know how much pain I'm in so after crying and doubting everything, I am going back to see the doctor next week for results of tests on my stomach which I know will show nothing is wrong with stomach! Honestly bothing like a male doc telling you that you're not in pain when your on the sofa/bed all the time due to pain! It took me so long to come to terms with my pain that I refuse to let a bowel doctor make me upset!
I'm hoping that there are other women who have the same problems met the same resistance and can help me feel less alone. I've not yet found anything that helps except for lying still. But I'm holding out hope whilst lying here trying to distract myself from the pain with my hot water bottle for company. I'm sorry for the long rant but I needed to let it out. Hope I haven't scared you!!
Lots of hugs