I thought I'd post this separate from the thread by hoopwhirl2007. Here is a very comprehensive article even though it's from 2010. I see a gyno specialist who is very well regarded and I'm not sure if she is aware of the possibilities. I sent this to her today, along with a request for her to order an MRI according to the guidelines at the Tarlov Cyst Disease Foundation.
Vulvar Pain and Tarlov Cysts