I have Tarlov Cysts base of my spine from falling down a flight of metal stair.
I cannot sit in a chair for long, stand for more than 5 minutes. I have pain down my leg that makes me cry out. Weakness in my right leg and I lose equilibrium often staggering which means at 32 years, I walk with a cane. Pressure on the area makes me yowl in pain. Plus other lovely symptoms.
After two years I was finally given disability PIP however it has affected me in many ways.
I was told by the consultant who informed me of the Tarlov Cysts, that they do not cause much problems. I contacted the Tarlov cysts foundation whom told me that this diagnosis was out of date and very wrong.
I need to find a Doctor / consultant who knows about Tarlov Cysts.
I want to have a consultation with someone who understands and can offer some ideas for getting better.
Does anyone know of Doctors in the North of England who specialize in Tarlov cyst understanding, or if not someone in the UK ?