desperate

[millyrose7]

hi my central nervous system is damaged for the last two years I’ve been suffering from vaginal nerve pain it’s making me want to pass water frequently I’ve been trying so gentle movements but due to having very severe fibromyalgia my movement is limited I’ve just tried to get appointment to see dr nothing until 1st dec 2022 I’d go hospital but I can’t be examined anyone any ideas had fibromyalgia 25 years

[Buhber]

all my support and my thoughts for you girl.

I suspect it's interstitial cystitis isn't it!?

[pizon]

I will pray for you…have them check you for pundel neuralgia…I was misdiagnosed time and again was told I had interstitial cystitis but all the while I had p/n…yoga and meditation have helped save me

[tailbone]

I'm so sorry to hear you are going through this! Is physiotherapy an option for you?

[endoTHENmesh]

Have you tried lidocaine suppositories/cream? They cannot be used constantly, but can give you some respite (sleep perhaps)? The 4 percent cream does not require a prescription in the US. Just select a cream without menthol.

Maximum Strength Lidocaine 5% Anorectal Cream | Hemorrhoid Relief from Pain, Itching, Burning | 30 Gram Tube Lidocaine 5% Cream a.co/d/hIJ27Vk

I also wonder if the nerve pain is due to spasms? In that case baclofen suppositories (prescription) might help. Same caveat - use periodically.

If you cannot get an appointment for months would your regular doctor help you out with a short term prescription to bridge you to the appointment? Doctors find pain hard to treat and therefore are in no hurry to see a pain patient. If one of those solutions help, they might even avoid being put in the difficult position of feeling impotent (no sexual implication intended).

[Konagirl60]

Have you developed a neurogenic bladder? Research it on Google. Just a suggestion.

[alansommer]

If its periferia abdominal neuropathy (which it could be) I would look for Maxima Hospital - Eindhoven - The Netherlands. They do have a state of the art neurological department. My sister was treated there with success. Try it! This info is gold.