Has anyone had this happen to them where every time you walk you have too pee ? I’ve read it’s stress incontenance anyone had this happen to them and was it cured ?
Walking and having too pee.. - Pelvic Pain Suppo...
Walking and having too pee..
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Acort89
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Yes, I have a hypertonic pelvic floor and I believe based on my research that it’s because of the muscles constantly being tight. For me the spot is in my vagina on the side thats towards my bladder, whenever something touches that muscle I get a dying urge to pee, and walking makes something touch it, so does sitting, so both things cause an insanely intense urge to pee. I have to basically waddle walk because it’s the worst when I move my thighs. My thighs are practically glued together and 99% of my walking is done with my knees downward. Not gonna be much help, because I’m sure you’ve heard it a million times, but a pelvic PT would probably be best .
Did they find a cure for you ? Are u also leaking Urine ?
No cure, no leaking urine, I’m seeing a pelvic PT in a few weeks
Im leaking Urine and I’m having to pee when I walk.. I’ll be seeing a specialist in a few weeks my gp mentioned my bladder dropped and then my appetite isn’t there it’s a mess..
Do u still walk like that ?
Me being nervous and anxious about it makes it worse .. do u have a oab? Do u think we’ll walk normal again have u asked for surgery?
I’m too cowardly for surgery, no mention of OAB from the multiple urologists and gynecologists I’ve seen, but I’m really optimistic about pelvic PT.
Mine is weird it calms down when I sit and lay down … does ur do that ? I feel like when I walk my bladder fills up.. I’ve had a ultrasound done where my bladder fills up and when I pee it’s empty they said my bladder works fine it’s that when I walk I pee and leak.. . I also feel open down there if that makes sense… I don’t want to be bed ridden for the rest of my life.I hope this isn’t permanent for us..
That sensation that I am telling you I feel like when I walk and it’s only on the side on the right side and my pelvis hurts on the right side so I mean I hope that they find something maybe it is a prolapse or stress incontinence but I just want them to get to the bottom of it because I hope this isn’t something permanent I mean…. It’s scary crazy .. can it even be like a sore hurt muscle ?
I have this problem too. Very annoying. I believe I am leaking when I walk because of gravity (I call it the gravity drain). The position of the bladder, plus the amount of urine in the bladder cause it to let go - this is stress urinary incontinence. My bladder is urogenic- I was severely damaged by transvaginal mesh - which means that I have lost the ability to "squeeze" my bladder. Fortunately, my urethra seems able to respond, I can open/close it. But when I am walking there is too much stress on it and I leak. I find that emptying my bladder and drinking as much as I can helps. With me a full bladder is more likely to empty totally. I have not found anyone who knows how to help this issue. 🙁
So when u walk u have too pee? It all started for me when I lifted something heavy.. I also leak and it’s weird because I feel like if something is open down there.. when I walk I have to pee..
I hope this to god isn’t permanent 
Yes. The pressure on my bladder increases when standing and with walking (legs on both sides moving, agitate my bladder) plus my pelvic floor is weak, from all the surgeries removing the mesh.
I haven’t had surgery yet… i have an upcoming mri of the pelvic area .. my right side feels weird and wet and then when I get up from the couch etc I feel open.. my gp said that she felt my bladder drop a little… I literally just want to be in bed all day..
Do u think it’s a permanent thing?
Maybe it's a prolapsed bladder ? I've got a pessary ring which has helped. I also still do my exercises......a bit like locking the door after the horse has bolted......but at least I feel I'm being pro-active. It's sneezing and coughing that makes me pee. I have felt like the incontinence pads definitely help. No wet marks on chairs ! I buy them from the supermarket but I think you can get them on prescription
Yeah that’s what I’m thinking but the specialist I got was garbage.. so now I’m going to see another.. that’s Im what I am thinking I just hope I don’t stay like this for ever.. did u experience this exact same thing? Did it completely go away ?
No it hasn't gone away. I just use the pads and feel more confident using them. I only need 1 pad a day and most times they are not dirty. I'm resigned to being like this at 69 yo. If it gets any worse then I'll see my GP. Maybe a different sized pessary would help. But I don't know.
Maybe a pressary diff size the obgyn can size you
Questions did u experience Urine retention and the loss of sensation to pee ?
Did u get treated right away? The specialist ordered an mri for me because she said it’s a better imaging then a cat scan.. I hate feeling helpless.. do u think it’s nerve damage ? I was told it’s nerve damage if we can’t walk at all and loose control completely of the bladder.
Even laying down I can hold the pee but as I’m laying down like I feel it so the first specialist thing it’s normal no there’s definitely something going on down there do you think the MRI will show what’s going on
No. There are things that can help. Stay away from transvaginal mesh. I was severely injured by it. I know many, many women also injured by it. If the docs start talking about a sling, tell them you want an autologous sling (made from your own tissue). Some doctors claim they are inferior, run from them. You will not react in any way to your own skin, and it can't cut you. They do use porcine, etc. grafts, I'd stay away from them as well. They are grafts from pigs, etc. The doctors prefer mesh, animal products because the surgery is much shorter.
I occasionally wake up with a wet bed. Aggravating to no end.
I don’t wet the bed I can hold it but it’s that when I walk I have too pee.. my anxiety is high but I need to calm down because I don’t want a prob to lead to another.. so u think it’s a fixable problem? I’m constipated as well I’m scared I’ll be bed ridden for the rest of my life.. I think my bladder or uterus is dropped because when invest it feels weird.
I feel sick because of it .. imagine not being able to walk normal again .. my bladder feels like it fills up fast but they did tests and it works normal.. I’m not crazy either it’s a weird feeling..
Are u going to be able to walk normal again?
Yes, for you thus should be totally fixable. I would try PT exercises first, they will strengthen your pelvic floor. If you have a prolapse, which is probable, they can do prolapse repair - just no mesh. It has maimed me for life.
I’ve been like this 2 months now.. are u going to get another surgery.. I hope even the urinating goes away because it’s sucks .. I’ve lost weight.. I know I should’ve be a scared but I am to not being able to run etc.. even when I do simple chores I feel open do u think it’s a prolapse ?
I can't tell absolutely from your symptoms, but it definitely is a possibility. You do not need to be afraid. It sounds like a prolapse. I have a prolapse as well. My doctor told me no one is going to touch until my bladder comes out and smacks me in the face. So, I think I just have to live with it. One thing you can try is a pessary. It holds up your bladder/uterus. That may put your bladder in the right position and since you can hold it, you should stop leaking.
The dr told me surgery they’ll do if ur symptoms are severe.. she told me to stay away from the pressary.. my thing is barely walking and having to owe the only time it calms down is if I lie down or sit.. literally.. I’m sorry to bombard you with questions but it’s like u understand this.. find a new specialist they’ll do surgery if ur symptoms are severe and disrupt ur life.. I’m constipated too and it sucks.. how long have u been like this?
The first specialist I went to that i had to get a new refferal even asked me if I had a uterus … he was soo bad I am in the process of switching.. so I think it’s my bladder or uterus that is out of place… I’m sorry to bombared I but i feel lost and I don’t want to be resting on a bed my whole life
Even when I eat my stomach feels weird I don’t know if I lost my appetite because I’m nervous or if something down there dropped
I hope it’s not nerve damage … but i do get my periods.. it’s just the walking and peeing does physical therapy fix that ?
Did u get treated right away? The specialist ordered an mri for me because she said it’s a better imaging then a cat scan.. I hate feeling helpless.. do u think it’s nerve damage ? I was told it’s nerve damage if we can’t walk at all and loose control completely of the bladder.
I get treated pretty quick here. Rarely wait more than 2 weeks. If you have Pudendal nerve damage, I do, then it is a different ball game. I do believe that this problem can be from just a prolapse. I do not know enough to be able to say. Prolapse is basically a part of your pelvic anatomy is not sitting where it is supposed to. This can create all kinds of issues. Leaking, pain, etc. The pudendal nerve controls the bladder, bowel and sexual function. If it is damaged it can cause problems in those areas.
I don’t think it’s nerve damage I mean I do understand what you mean when you say that a prolapse causes a bunch of stuff which it does like an overactive bladder pain etc. but I’m telling you I feel open down there and when I’m leaking like to have to pee and then I still feel like I have Pee down there which is kind of weird but yeah I mean I just want to be able to walk again normal
Do u think an mri will show that kind of stuff
I wondered why they are doing an MRI. Maybe they are suspecting something else. I have not heard of a MRI for prolapse.
I mean by the symptoms I am having to do think It sounds like a propose the walking and getting the urge to pee and Having to pee and then the leaking and feeling open sound like a prolapse ?
This doesn’t sound like painful bladder syndrome You mentioned you experienced the when walking and peeing like myself
I do not have painful bladder syndrome. I have a neurogenic bladder. Which means pretty much it doesn't work. I do get urethra pain from the pudendal nerve damage and from UTI's. Since pain is not your issue. It sounds like prolapse. I have no idea why they are doing an MRI. Your urethra sounds weakened when pressure applied (standing, or even sitting can do that). My urethra, having been reconstructed 3 times, can hold back some urine, but leaks like a sieve with any pressure applied. Whether it is from being full or from position. Laying down is usually best. However, if I get over fill it will let go. I have both prolapse and nerve damage. I hope this helps. I would try to find out what the purpose of the MRI is.
I have been getting abdominal pain probably because I’m worrying too much .. they are doing the mri for a better look my cat scan wasn’t clear since I’m having pelvic pain on that one side.. but it’s sounding like a prolapse I’m just waiting foe my appt w the specialist now.. have u tried fixing ur prolapse ?
I had transvaginal mesh in 2008 for stress urinary incontinence. It has ruined my life. I am probably incontinent for the rest of my life. I have had 22 surgeries in the last 10 years trying to take care of the mesh issue. Pain is now my biggest issue. I will say that the surgery for stress incontinence worked very well and I did not leak until the mesh eroded.
Oh wow but the transvaginal mesh wasn’t made of ur own skin ? There’s also the sling I think. Have u tried a urogynocologist ? That’s my biggest fear if I’m going to be bed ridden for the rest of my life.. when I lay down I don’t get any urges to pee.
No it was made of plastic. Polypropylene. Autologous is your own skin, only really good doctors want to use that. It takes 3 hours vs. 30 mins with plastic or a man-made graft. I know many women harmed by this. Ask a lot of questions. They may send you to physical therapy first, that is always the best bet. It doesn't work for everyone. I wish I had known that. But do not fear, this isn't forever. Right now, make sure to pee every time you get up. Are you leaking really heavy? Then wear a pad made for incontinence. Prolapse can cause pain, the organ is pulling on your muscles that are supposed to hold them in place. I can feel my bladder all the time now. Hopefully I will find someone who will try.
I was leaking more before I’m not leaking a lot a lot but I still am whether I’m laying down or walking.. I do always wear a pad. You should find another opinion.. I’m sure a dr will help you keep insisting.. thank you 😊 I feel at ease now knowing it’s not a forever thing.. yeah I just got a referral for physical therapy I go in a week and a half.. I hope I can walk again normal because I feel that pull on one side..
Also ask what the "sling" is made of. They use a lot of words to keep from identifying that mesh is involved. They call it a "sling" or a graft, amongst other things.
When I get up and do things I feel open down there .. it’s a weird feeling .. That’s a prolapse feeling right . I got up and felt open if it makes sense.. going to the er is useless so I got a referral to a specialist and now waiting for an appt finally
I believe you will. It will take time. I have leaked when I walk for several years now. While you are waiting for the doctor, try to keep your bladder empty. You should leak less than. Since you are not leaking at night, you don't have a fistula, that would be draining 24/7. You did say you can control your urethra when laying down. So it sounds like a mechanical issue to me. Your bladder is sliding/falling down causing your urethra to open, from pressure exerted on it from position it ends up in. When you lay down, gravity causes your bladder to go back into position. I am so sorry you are suffering with this, but it should be temporary. I can't tolerate a pessary either. Has the doctor checked you standing up? A friend of mine kept telling the doctor that it didn't feel right. He'd have her lay down and check her. Everything was fine. She got up while he was in the room, she said I have that feeling again. So he looked again while she was standing and he said- oh you do have a pretty bad prolapse!
You know what I have to stop being like nervous because I think you’re right you hit the nail on the head because when I lay down or sit I feel It doesn’t you know bother me like I don’t have the urge to pee but as soon as I start walking a little bit boom I have to run to the bathroom and pee so bad it is affecting me because it’s like it’s just crazy.. They even gave me medication for an overactive bladder because this is even affecting me the whole frequent urinating but my GP told me that she physically felt me during the pelvic exam my oh my bladder dropped so that’s why the doctor ordered an MRI to confirm and then I am waiting for the referral to the new specialist they referred me too because the first one was really bad
I just have to learn to chill and not worry about this
And Lasyky I don’t want to bore u but even doing tasks I feel pressure down there so there’s something going on and stomach pain omfg I don’t if nerves or all part of that.. I hope god helps us both ♥️
So I wonder if stomach pain is associated
I don't think a prolapse would cause a stomach ache, but being burdened with one could. One thing I have learned is everything is interconnected. Doctors like to separate us into specialties, but they don't take into consideration how one system impacts another. I have been thinking and I wonder if part of the reason you have to pee when standing is the pressure standing is putting on your urethra. Are you getting pain with this? My urethra was severely damaged and has been reconstructed 3 times (why I hate mesh so much). Also this might make you susceptible to UTI's. D-mannose is great at preventing them. I don't know if you have a history of UTI's. But the pain I get in the urethra from them is horrendous.
I’m not getting utis.. it’s been years that I’ve had one.. it’s probably the stress that I have because of this maybe that’s making my stomach hurt but I’m learning to chill now and relax but I don’t know like right now I got off for the couch and I felt like my stomach like not my stomach bladder you know that area move that that has to be a prolapse right?
Even driving I feel something down there it’s all weird
Yes its physical therapy also know as pelvic floor ex cerise no worries u are nor butting in 
No problem.. whats Ur story?
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