Success stories, healing for PN

[Wewillgetbetter]

I am calling all those both male and female who have healed from PN or PNE to kindly share their story with us to give hope and inspiration. This may be a thread that can give many to come in the future hope and prevent suicide from this horrible pain.

[pizon]

I would not say that I am healed..I do not know if I will ever be the same however I found with understanding the condition (I did physical therapy for chronic pain) some people use the curable app and I do yoga for reliving pelvic pain by Dustainne Miller I also read the book by Amy Stein Healing pelvic pain this is what has helped me I am able to garden within limits and walk so life is different but very good I also use valerian root and hops herbs instead of pharmaceuticals and medical marijuana for sleep I hope this helps because I was on the sofa for 2 years I just pray that there is more help in the future for our condition wishing you all health

[Wewillgetbetter in reply to pizon]

Thank you Pizon. I appreciate you taking the time to share what helped you, even if it didn't fully cure you. I also use herbs which help - they help more than medication for me too. I pray you heal, and again thank you deeply for sharing what helped you.

[pizon in reply to Wewillgetbetter]

Take care I hope what little I know can help others this is such a horrid condition

[Konagirl60]

I had PNE. I was dismissed and gas lighted by every doctor I saw in my home province here in Canada. I was labeled having a nerve imbalance. NOT!

I was given a multitude of medications which did not at all help the intractable compressed/ pinched nerve pain but did cause many terrible side effects like bloating, weight gain, irritability, brain fog, dry mouth, serotonin syndrome and eventually I lost normal cognitive function due to 3.5 years of severe sleep deprivation.

Conservative medication management is essentially a passive form of euthanasia......I almost died. I stood up all day for over 18 months as sitting was agony. My rectum was electrocuted.

If it’s true entrapment you’ll need a series of fluoroscopy or CT guided nerve blocks with both anesthetic and steroid injected into your pudendal nerve roots in your buttock. Most entrapments are between the sacrotuberous and sacrosphinous ligaments but some occur in the Alcock’s canal and injections can be done into it.

The nerve blocks are a success IF you can sit pain free after them. They don’t usually last BUT they do help determine which section of the nerve is entrapped.

I got help in Toronto and Minneapolis. I had my right pudendal nerve and inferior rectal nerve released via decompression surgery 3.5 years after this injury arose. It helped tremendously as the burning pain is gone.

I am not fully better. I still require meds, rest days, I can only walk or swim and I need to pace myself daily. Stooping, lifting anything heavy, bending over my groin can trigger inflammation. I have chronic neuritis.

I use Boswellia, turmeric, passionflower and magnesium to help.