Pelvic congestive syndrome

[beckyluck]

Hi,

I am new to this forum and have recently been diagnosed (by letter) with pelvic congestive syndrome, are there any other people on this forum who have the same? I had an MRI that picked it up after suffering with severe right sided groin pain for 6 months, I had an ultrasound about 2 months ago that picked up reflux in some of the veins. I have since been waiting for an appointment with a consultant but am aware that because of Covid this could take a while. I have recently started to get severe sharp pains travelling down my leg and was wondering if anyone else suffers with this and if this is normal?

Any advice would be appreciated.

Thanks

Becky

[Ellenlar]

Hi! I'm awaiting a diagnosis for endo, but I always get this pins and needles constant throbing tickling down pain in one of my inner thighs, down to about my knee, beginning at my lower abdomen... I have no clue is this is the same sort of thing... Iv had it about 8 months and its so severe when I lay down.. Keeps me awake sometimes, I have no clue what if this is the same realm or symptoms but this post reminded me of it, I hope your okay and managing well maybe ask ur gp to write a letter to the department who is helping you to maybe push it forward? Thats what I had to do with my lap 🤷‍♀️ hope ur OK x

[beckyluck in reply to Ellenlar]

Hi,

I’m sorry to hear you are going through something similar, I have another health condition (essential thrombocythemia) and will be having my regular 3 month consultation on Thursday so I may ask if they an push things along. I was in so much pain last night I hardly got any sleep but it’s feeling a little better today. I do feel it’s not something I can put up with though.

I hope your ok and managing your pain well, fingers crossed you will hear something soon. I get the feeling that Covid and other priorities are above certain diagnosis’s and appointments but hopefully we will get seen soon.

Take care x

[Ellenlar in reply to beckyluck]

Aw bless you! I really hope they can help you sometimes we need to be firm with these situations! I hope it all works out for you! Let me know how it goes! I am thanks, just constantly on these pages and groups to try and get more understanding I guess haha! Sending all the good luck and positivity your way!