PID

[Rebecca7913]

Hi,

Not really sure what I will gain from this post but feeling pretty disheartened so thought I would Express some thoughts and questions here.

I have just been diagnosed with pelvic inflammatory disease following 4 weeks of being ignored by my gp with heavy discharge and pain. I was diagnosed following examination and tests.

So I've had an injection of antibiotic and have two further boxes for two weeks. So right now, because its commonly associated with sti (my sti swabs are negative) I'm feeling a lot like it's my own fault, that I'm ashamed and just feeling pretty awful.

Infertility was mentioned, has anyone experience of having a 1st diagnosis of PID having infertility following?

They advised after the treatment I wouldn't have any more issues.. I'm so worried about it continuing or experiencing pain following the treatment. Anyone advice on this?

Just looking and praying for any reassurance that 'it's all going to be ok'

Thanks all and any responses welcome.

[lucikam]

Hi! Can I ask which examination and tests showed them finally that you have pid?

[Rebecca7913 in reply to lucikam]

Hi,

I visited my local.sexual health clinic originally to get my coil checked and my list of symptoms looked at. I was diagnosed following just a history of symptoms and then an internal examination. Internally its red, excoriated, some bleeding and all inflamed and with the pain on examination and the history the doctor diagnosed straight away.

Swabs have been taken and sent however they advised they often all come back negative any how. Got given treatment straight away. I was there for almost 2 hours going through everything.

[lucikam in reply to Rebecca7913]

Thank you for your reply. What was your history of symptoms? Do you mean pain on examination while they do the pressing test on the ovaries and uterus? Was it painful for you? I do not understand why all the websites say that pid is almost every time from std, while I do not met any real person (online) with std and pid. They always say their std tests are negative and still have pid. So are these tests accurate at all? Or how can someone have pid then? Did they test the inflamatory factors for you via blood test? (not std, like white blood cel, plasma vicosity, crp)

[Rebecca7913 in reply to lucikam]

Some struggle and pain on passing urine, heavy abnormal discharge, lower abdo pain and pain during sex. Yep even inserting the speculum was excruciating, then pain on swabbing and pain everywhere internal during examination. So PID also can be caused by a bacteria that has lived externally and then travelled internally. It's also there are other types of bacteria (still sti really) that can cause it however they dont test for these at the labs because it's better to just treat it and you will never ever know where or how it happened. They just now diagnose on examination and symptoms because of this. No positive swab needed. No the bloods I had where just part of sti screen, they dont check inflammatory markers

[Cinnamonan]

I’ve had PID due to my IUD before. My body clearly didn’t take to it well and it was extremely painful. Antibiotics didn’t help until a family planning nurse took it out.

I think the majority of PID is caused by bacteria that normally live in the vagina that make their way further up. 1/4 cases are related to STIs.

If you’re not getting any improvement from the antibiotics I would push to have further examinations - it me a few weeks of putting my foot down... hope you’re ok!

[Schroedie]

Sorry to hear of your situation, Rebecca. I've no experience of this but I really had to fight to see a consultant over my prolapse: I knew there was something wrong but my GP said she couldn't find anything, then said she'd refer me but decided not to (I found out when I rang up two months later to ask what was happening). I finally saw a nurse who instantly said you've got a prolapse, but it was only the GP who could refer me for a consultation so back to square one after six wasted months.

Can you see a different GP or a different hospital? I ended up researching my condition and asking for a pessary, which has meant I can carry on as normal. If I hadn't kept going back and politely but firmly asking for something to be done I'd still be out there with an untreated prolapse making life a misery for me.

Now I'm living in a different health area where they're much more sympathetic. But Gloucestershire - you need to be named and shamed - couldn't have cared less!

Good luck and keep fighting, and don't let them tell you Covid has meant nothing can be done. It damn well can!

[Rallygirl]

It will be okay in the end, if its not okay, its not the end...

It seems that despite the internet, it is really hard to understand what is going on when you get problems Gynaecologically because no one seems to want to talk about it. Its really scary when things start happening with your body and you dont know what it is, so lets break this cycle of not talking. Start the conversation, wherever you are. You dont know who it is going to help or how it may help you. Nothing should be taboo anymore Lets get everyone talking!