SPD/PGP before period

[monkeypupb]

Hello,

I’m not sure if anyone can help me, I just feel lost with this. I had SPD on and off before I fell pregnant with my daughter in 2016. I was on crutches from 8 weeks pregnant and this got worse until about 3 months after delivery. Roll on a few years and when I was pregnant with my son the joint pain and weakness spread into my wrists/fingers/knees etc. In between my pregnancy’s I found for about a week before my period I had a return of symptoms, joint weakness, pain etc. I’m now 6 months postpartum and haven’t yet as a period due to breastfeeding but I’m dreading it coming back and the fight to get heard again. I believe it’s due to hormones as when I started taking the pill a few months ago I was less than a week in before I couldn’t walk again, let alone carry my so, so I quickly stopped the pill and have been pain free again for months. I have been tested for endometriosis and ehlers danlos but these both came back negative. I just don’t know who to talk to next. I feel like no one believes the pain I’m in and I’m often told that I’m just depressed or anxious when I try to bring it up with the GP. I feel like I’ve got a ticking time bomb just trying to enjoy the time I have before the return of the dreaded cycle. Does anyone have anything similar? Or any ideas of what it could be or what we could be missing? Or can just relate to not feeling heard?

Jx

[Moon_maiden]

Hi

Could I ask what test you had for endometriosis?

Laparoscopy is the only sure way to tell

Many thanks

[monkeypupb in reply to Moon_maiden]

Sorry, should have made it clearer! I did have a laparoscopy about a year ago.

[Moon_maiden in reply to monkeypupb]

That makes sense 🙂, was it someone experienced with endo, I’ve heard people’s experiences where it’s been missed. There is a multitude of other things. If you haven’t had an MRI, push for this. More showed up on this than an ultrasound for me.

Maybe keep a note of symptoms, what you’ve eaten, etc., and see if you can build a pattern.

It took me most of last year and a private consultation with a gynaecologist to prove to GP’s there is a physical cause for the pain and everything else.