I might have made a mistake - Pelvic Pain Suppo...

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I might have made a mistake

mantha32 profile image
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So last week I saw my new consultant. After reviewing 10 years of case history and results of latest scans she has decided to diagnose Endometriosis/Adenomiosis and try to treat it with medically induced menopause using an injection. First dose was done there and then and I was given a prescription for HRT tablets.

I am back next month for the next injection but I have no idea what I am doing, what to expect or how long this will all last. But yeah my family are in lockdown with me going through whatever the hell I'm going through 😱. Oh let the fun times begin.

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mantha32
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Pumpkins226 profile image
Pumpkins226

So you had Lupron? Doesn't work at all. And BTW be prepared to have to roll out of bed in the morning onto the floor because your in too much body pain to properly get out if bed (VERY scary, although it passed for me). STOP taking it now.

Alaine1 profile image
Alaine1Administrator in reply toPumpkins226

I’m on zoladex for endometriosis and adenomyosis. It is a very similar drug to Lupron with add back HRT. Not everyone gets side effects or long term side effects. Many of those taking lupron with side effects long term weren’t prescribed or refused to take add back HRT. There can also be other causes such as smoking long term which is known to be a cause of bone thinning. For me zoladex has been a life saver as no other medication worked especially in controlling the bleeding which lasted 3 weeks of every month.

Mantha32 you might find you don’t get much benefit until the 2 or 3 injection. For me it was the 3 injection which I have every three weeks. I’d say hang in there, take the HRT (I take livial) and if possible track your symptoms daily, so you might find the bleeding stops before you notice pain relief. You can do this as a pain diary or on an app. I personally keep a pain diary. I hope this helps

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