Well I have been suffering pelvic pain for 30 years, every year I have got a little bit worse. I have had about five attempts at getting something from the medical people to help but without success. The location of my pain has changed I now have most of the pain in the pubic bone / groin area that radiates out.
Every day is a struggle to carry out normal activities like walking, I have pushed myself for thirty years but am now running out of the resolve to keep going, do I just accept that I am disabled and withdraw from life !,! this is not particularly appealing.
I have got to the stage where I think about the end frequently, don't get me wrong I have never been unemployed and have literally crawled up the stairs in railway stations to get to work. so I am no quitter having held down a responsible job. But the flare ups are now more frequent and I have been incapacitated most of the year with pain.
Six months ago I went back to my GP and asked for a referral to the UCH in London, I attended an appointment there 2 weeks ago, they are going to arrange an MRI and I have another appointment in three months time. I see this as my last chance however they told me that the MRI rarely shows anything. I asked what would happen next should this be the case and was told that they could try an injection but that these more often than not do not work.
So here I am waiting another 3 months for the follow up appointment, I am disabled by the pain and gradually withdrawing from life. I have always been someone that wants to achieve something, the couch potato life is eroding and not for me. I take tramadol but this only takes the edge away, I tried Gabapentin but this made my legs swell up.
It seems that the medical profession do not have much else to offer therefore there is no reason to be optimistic. If anyone has any other suggestions they will be gratefully received, at the moment all I can see is decline and the end.