Pain in or around the pubic bone area

[Buuldog]

Hi I am a male who has suffered from pelvic pain for over 30 years, I have managed this up until the start of this year when my symptoms got worse and I developed severe pain in the pubic bone area.

I went back to my doctor and was referred to the hospital that was in March this year. I was put on an NHS waiting list and last week I had an appointment for an MRI of the pelvic. I have had the pain in the pubic bone area since March therefore 8 months and during this time I had gone from not being able to walk at all to being able to walk about 30 minutes before the pain became to intense.

When I had the MRI the technician strapped a pad or board across my pelvic which has resulted in the pain going back to the level that I had in March, therefore the slight compression onto the pubic bone area has reversed any progress that I have made in the last 8 months. I will not get the results of the MRI until the end of November, due to the good old NHS waiting list.

Has anyone experienced this when having an MRI, this obviously indicates that the pain that I am having now originates from the pubic bone area and pressure onto this even if slight aggravates the problem. Has anyone on here had severe pain in this area. I am not hopeful that I will get a diagnosis I have tried about 6 times during the last 30 years but on each occasion have met with a dead end.

This pain in the pubic bone area is new, previously the pain was in the sit area and I still have this. I have lived with pain for 30 years I am used to dealing with a high level of pain, however due to the new progressing symptoms I am now desperate for some relief, does this sound familiar to anyone on the forum and if so are there any suggestions.

Thanks

[kalecolbe12]

It seems you may have pudental neuralgia and pfd which is the major nerve that innervates the whole pelvic area...it originates in the sacral are....it branches into pubic,rectal,penile in men and can be clitoral in women and urthra in both.I have had the rectal claim for 10 months and I'm going to once a week pelvic floor physical therapy which has helped a lot but I also take muscle relaxants and the doctor just gave me some gabapentin which is a nerve pill I have it fairly well-managed with stretches rating meds and PT so I'm wondering if you've been to a pelvic floor physical therapist because they can do wonders they do mobilization which helps to freethe nerve up

[kalecolbe12]

Sorry second reply because I wasn't finished with the first one...I would also recommend you read headache in the pelvis which explains all of this and a lot of people with this pelvic pain need to see a neurologist too because of the pain involvement. My pain doctor told me it takes a little bit of everything to get this taken care of and it takes a long time but it includes the doctors the pain/nerve medications,home excercises ,diaphramic breathing.....I'm not a doctor but hopefully this helps

[swarke22]

Hi I have a chronic pelvic pain for about nine years now and the pubic symphysis and sit bone area. I have had operations on the pudendal nerve and I find that none of this has really helped. The only thing that did help marginally is that I had the nerve removed in America. What I did find out just recently and I’m not sure exactly if a man could get it but I assume he could, (more common in women) is that the ligaments of the pelvic girdle can stretch and therefore not hold when people affected try and sit. I have looked on the Internet as we people have nothing else to look at and the support from the NHS has been very poor indeed. I had a MRI scan last year and have been much worse since the MRI scan. The doctor in America who operated on me went to a conference the other day and he found out and emailed me immediately because he believed that Most my pain was from all these ligaments in the pelvic girdle. The ligaments from the pelvic girdle sit around the sacroiliac joints and the pubic symphysis and that once they have stretched there seem to be very little they could do until recently. It was then found out that to put high concentrations of platelet rich plasma into the areas under CT guidance was helping the ligaments heal. the reason the ligaments don’t heal without this help is that the blood flow is very little to this area. He recommended the Alco cells website In Birmingham and London. I’m doing the research and finding that they use the regenexx machine which has been used in the successful cases in America and they spin your own blood and produces

an orange platelets which When injected back in to your body at the sacroiliac and pubic synthesis joints this helps to tighten the ligaments, however, it is my understanding that more than One round of injections might be needed. I believe the cost of one round is approximately £3400. So if you had three you would be talking about just over £10,000. It is my intention to try and raise the money for these injections just to see if they will work as I am in mostly constant pain now. . I will then come back on this site and let people know. I am disgusted at the amount of people who are suffering like I am in the UK and the NHS cannot or will not help them. Please feel free to private message me.

[willemine]

I have severe pain on / behind my pubic bone i was diagnosed with pudendus neuralgy you can look for it on the site pudendalhope. I can t sit for 4 years now. I hope you get some relieve

[RobertVerde]

PT can help and read the book - it gives you perspective.

[willemine]

I have pt twice a week and witch book do you advise to read ? I have PTNS treatment ones a week and i think it helped me tremendously i have 1/ 3 los of the pain.