Has anyone here with pudendal neuralg... - Pelvic Pain Suppo...

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Has anyone here with pudendal neuralgia recently had success with a DRG implant?

Puffsplus2008
Puffsplus2008

Just wondering. I'm waiting to hear back re: insurance approval for a DRG neurostimulator and I've heard of a few success stories. Just wondering if anyone here has been successful with the same.

I know there are some older threads re: DRG, and also something called wave stim?? Just wondered if there are any newbies who can report in.

8 Replies
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I had both drg & scs 8 day trials. Drg reduced pain by 30%; retrograde scs reduced by 70%. I had the permanent scs end nov & there is definite improvement but I’m still working w reps to program as implant heals in place.

Everyone is different as we know well.

Good luck & let us know. (Many ins view stim as experimental for PN so my doc codes as coccydynia & chronic pain syndrome which are approved. I learned the hard way & wasted 5 months w appeals and eventually went to diff doc.

Puffsplus2008
Puffsplus2008
in reply to Rxmom

Never heard of retrograde stim. Good to know another possible treatment, thx.

Lexi1221
Lexi1221
in reply to Rxmom

Where were your leads placed? Where is your pain? I had DRG placed 2X first by S2 and S3 second L1 and S2. I have vaginal and rectal pain. Neither has worked very well.

Jev1972
Jev1972
in reply to Rxmom

What brand? Currently running a Medtronic trial.

Shelall
Shelall
in reply to Rxmom

Yes where were leads placed and what device? 70% improvement is great.

I don’t trust it....it’s a foreign body. Not natural. Good luck.

I had DRG Implant Jan 2018. So far 50-60% relief. I had difficult time getting to the correct adjustments since I was having so many spasms from PN it was hard to differentiate between my spasms and the DRG stimulation signal. I can only say for myself it has been beneficial but everyone is different. I have several posts out there you can read. Good luck and let us know how you do. Rocky 68

Thanks for sharing. I don’t get pain in spasms, so I wonder if that’s better or worse for prognosis. Still waiting on ins approval at this point.

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