Tess 60

[Tess60]

Fentanyl patches

Have PN, SI joint, disfuntion as well as as 13 botched pelvic surgeries.. been through injections, acupuncture and now have been diagnosed with IBS fits with the rest of picture have had trouble for 30+ years but last 3 have been excruciating. I am bi-polar so mood stable except with pain.. Been on Percocet, methodone, savella(seemed to help for while).Back doctors give guided si and prudental nerve injection not working much anymore pain doctor recently started on fentynl for long term pain and Percocet for breakthrough. Please help has anyone gone through these drugs and does fentyln work. So many days have considered going where my husband does not see me in pain everyday and commit suicide although hard on antidepressants. Please help if any one has been through the doctors mess who say can’t help. Any suggestions for day to day living at my age would be appreciated thanks

[Mascaro]

I have PN. On Lyrica, Cymbalta, and Cannabis. I exercise, pray, and meditate. Things have gotten better. I try and not give into the pain. I do much Self talk. I limit the amount of time I discuss my problem. I force myself to do things. Things will be ok for you as long as you don't look back. I will not let this thing define me. I will keep fighting till I am done with this. I try and limit my sitting. If I know we are going out to dinner I try and lie down for a while so I will be ready. I adjust my life. I carry a cushion with me everywhere. Stay positive and don't quit.

[rozamond]

I do the same I am about to go play cards a bit fl difficult to sit but sometimes I get interested in game and I can endure

[Theotis]

I also have this horrific condition, but I don’t have a proper diagnosis and don’t know how to get one. No surgeries as of yet. In fact, the pain specialists agreed that my pain was not nerve pain because the pain was throbbing and moved around; it’s not a typical presentation of nerve pain. So, it was off to the pain clinic, opioid medications, and all of the scrutiny and judgement that goes along with being part of the, “opioid crisis in America.”

I WAS diagnosed with Lichen Sclerosis which just complicates matters but finally, after about five years on morphine and it’s relatives, I ended up in the office of a specialist dermatologist who extended the diagnosis to Vulvodyna, which allowed her the latitude to prescribe Gabapentin. What a godsend. It took A YEAR for me to get on the drug and I am still increasing the dosage, but slowly now, as I wean myself as far off of opioids as I can.

I had a life and lucrative work that I took great pride in. That is gone. I am slowly becoming more functional, but I don’t know what the hell to do with myself. I am presently clearing the wreckage, unpaid taxes, a bench warrant for missed jury duty, a house in shambles and I am beginning to focus on some self care, trying to find exercise that won’t cause “flare ups”, feeding myself etc.

No one knows much about this condition, as evidenced by your numerous surgeries, pain medication and continued pain. Doctors don’t want me as a patient because I’m a junkie as far as they are concerned. It is really really hard. One day at a time, sister.

[STUBBORNGIRL7368]

This is so heartbreaking. I have on, so joint dysfunction, a right leg amputation and institial cystitis. At its worst I am hysterical almost from the pain. This pain is worse than childbirth. I take gabapentin 1800 mg daily, a.itriptilline 50 mg and a fentyl patch...i never thought my life would end up.like this. Vivant tell u for how long I fought against suicide to end the physical pain. The one thing that helped was a woman's pelvic floor physical therapist. After two years of being crazy with pain. It sounds like this may be a possibility.for u. I wish u well. If I could help in any way, just ask. Blessings ur way. Misti