Pelvic Pain Support Network
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TVT mesh

Spoke to dr regards bladder pain, she didn't think much, she said it's not that the repair has been compromised with other surgery down there, but mesh Might have come loose through time , but they would send me to physo to do exercises, even though I have been told my pelvic floor is ok, they are trying not to use the mesh , due to bad press, any suggestions , definitely need to get second opinion. Grr

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Yes. I have also heard that other patients have had problems after surgeons have used Mesh in pelvic surgery. I think it is best if you do some research into Surgical Mesh and see if that could lead to some answers for you. All the best. XX

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Yes, definitely get a second opinion. For me and many of my friends PT made our pain worse. So something to look for. The companies knew that some patients would experience pain and erosion ahead of time and they manufactured it anyway. So bad press is truth. I've been reading medical journal reports and everything I can find since 2009. Please find a doctor who deals with mesh complications.

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Hi again. ' ... might have come loose through time ....' ????

Not exactly a diagnosis is it!

How can she tell nothings happened down there - from internal examination? If the mesh has 'come loose' surely it needs fixing.

How about asking if any scan could confirm what has happened for sure. Maybe ask about Ultrasound scan and internal Ultrasound scan. Would they be of any help I wonder.

Or have you considered self referal to the Continence Nurse / Adviser( if you can do self referals in your area. )

How long will you wait to see the Women's health physiotherapist? Will that be soon? Maybe she can help with investigations?

The Bladder & Bowel Community have a helpline re-opens Tuesday. I will post number.

Angie on helpline can give you number for Continence Nurse in your area.

X🐥

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Back again - the Bladder & Bowel helpline number is

01926 357220

But you could email Morven McPhillips and ask her to phone you on Tuesday. She is the new Advanced Nurse for Continence in NHS Highlands and she only started last month. Perhaps she could help or point you in the right direction for help. Email

morvenmcphillips@nhs.net

X🐥

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Thank you for the information, definitely be contacting her, but it will have to after my holiday for two weeks, xx

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Hope you manage to have a lovely time.

Sorry I have only just seen your post from 3 days ago. Don't understand why as I have been checking. I am now following so should be notified maybe. I have had some trouble seeing posts. But new to this.

Happy Easter

X

🐥

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🐣

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Here I am back in Turkey, having severe pain down in the pelvic, needing to walk with crutches on bad days, Dr thinks tvt is causing the pain and my bowel consultant thinks that two , waiting to be checked

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Will a Specialist see you in the hospital over there on your holiday insurance ? What are the hospitals like there? If you just got a scan it would be worthwhile? ?

When you get back will you ask your GP to "up" your referal to urgent. Can you do that by phone now?

It's crazy that they didn't see you and start investigations before you went on holiday. Definitely chase up your appoinment ?? Phone hospital to ask when it will be?

12345 's reply is interesting. I am going to send her a pm to ask her surgeon 's name.

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Dr was going to chase the specialist up before I left in holiday, so hopefully there is a letter waiting for me when I get back, x

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On BBC1 Victoria Derbyshire show (2hour) programme, Tuesday 18th April. the whole programme i dedicated to Mesh, Lots of Scottish patients/ Watch the programme on Catchup TV or BBC i player / Trans Labial scan, is the scan to see TVT(mesh) xx

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Ok cool will watch when I get back from holiday, been not well last night with pelvic pain, so today is being a lazy day by the pool, lol I am in turkey for two weeks xx

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I have just had the TVT yesterday, I have got an amazing surgeon, I am in no pain today and I'm emptying my bladder, I was really scared before hand as had read some horror stories but I think it depends on the surgeon make sure anyone that is having it done has a good one, I wouldn't let anyone other than mine do it. he is the best. I'm not to lift for a month heavy things but I'm walking around the house and garden and doing light things like wiping work tops and emptying dish washer one cup at a time hahaha, just being sensible, it was a breeze to be fair, but I have had a lot of leg operations with melanoma so this has been easy compared with my other operation,.s good luck to anyone thinking of having it done, don't be scared like I was. I'm so happy now ive gone for it, couldn't carry on wearing pads and feeling like I'm 90. xxxx

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