ON THE RADIO ABOUT PNE AND PELVIC PAIN

[chillijava]

hi all

just to let you know that i have had confirmation of my chat on the radio about pne and pelvic pain

i will be on BBC RADIO NOTTINGHAM on MONDAY 13TH FEBRUARY, on the MARK DENNISON SHOW at 10AM, i am hoping to increase awareness of this condition and of this super website, wish me luck

andrea

[Alaine1 Administrator]

Hi Andrea

That's great news that you have a date for the radio broadcast. I'm sure as a result there will be people out there who are suffering with the same thing and haven't gone to their GPs. This will hopefully get more people going to their doctors, getting referred and the general message out there that there isn't enough help out there. I'm wishing you lots of luck, even though you won't need it as I can feel how determined you are 🌟

[chillijava in reply to Alaine1]

thanks for your email, the response on here has been very positive and thats great we need as many people as we can to know about these life changing conditions

andrea

[Hornsealady]

It's in good in my diary! Good luck!!!!

[chillijava]

i am going to need it i am quite nervous about it and thats making my fibro flare, but i will not give in our voices need to be heard

andrea

[lynnm]

Good luck , spread the message . I have gluten ataxia and not many people in Nottingham have a clue nor do most doctors. I'm under Sheffield royal hallam under Dr Marios Hadjivassiliou he is top of his field . Pain management at city hospital are running out if things to try with pain relief . So I wish you every good wishes at getting the message of pelvic pain and how debilitating it is . Lynn in nottinghamshire

[chillijava in reply to lynnm]

that is why i feel like i must speak up for us all, its not just for me but for all of us who suffer pelvic pain, nobody seems to understand what we go through day after day, because most of the times we look ok, they also think when you say the word disabled that we have wheelchairs, i always say i am disabled in reverse as sitting is my main problem

andrea

[trevormorgan]

How did it go?

[chillijava]

great thanks, if you check through all the posts from tuesday, someone kindly put the links on here for all to listen to

andrea