Mags

[101952]

Hi my name is mags and in my 60 s iv now been diagnosed with vulvodynia so wondered what I can do to ease the pain I'm on medication from my doctor also have cream any advice would be gratefull received thank you

[B1hopefu]

Have you tried talking to a physiotherapist who deals with women's health, it's really helped me with this type of pain

[101952 in reply to B1hopefu]

No I haven,t I did not no you could I'll as my doctor see if she can send me x x thank you

[Jen82]

Hi I recently replied to someone else post on vulvodynia - hope this helps.

I also have vulvodynia and was finally diagnosed in 2003 at my local GUM clinic who I go to every six months or so for reviews under one consultant there. Where abouts do you live?

Definitely echo the others comments that there is more treatment than just amitriptyline and lidocaine. I only wear bamboo knickers now and leggings or skirts or.jogging bottoms. Can't wear jeans anymore. I've had physio and more recently acupuncture. The charity link will be a great source of info and they have a book you can get witj more info.

You have to find what works for you. For me I now use a sit to stand desk and gel cushions to sit on. Tens machine is my saviour. Various meds, physio, acupuncture really helped, go to body balance and exercise although that is painful witj the friction but shower straight after and use cold compresses and usually a lie down! Cold compresses are brilliant (wrap in a flannel). Check what you are washing with as that can irritate. My period blood irritates me too and the towels so just wear old knickers as much as possible. And rest so lying out. Oh and glutes get so tight so massage on glutes which physio first did. There are also internal and external stretches to do that physio would give u. As mentioned by need needs to be women's physio.

Shout if you want to talk or have any further questions xx

[101952 in reply to Jen82]

I live in Lowestoft Suffolk I'm 64 I only use simple shower gel and hair shampoo etc thank u so much for all your info I'll certainly try physio I'll see where I can go round here x. Thank you. X x

[101952 in reply to Jen82]

Thank you for all your help sorry for late reply as been unwell x

[101952]

Hi no I have not my doctors given me creams and tablets but has said nothing about what else could be done thank u ill certainly be looking it up mine started 4 months ago for no reason but had to have 2 tumours removed from inside the bladder so was wondering if the tumours could of set it off x x thank u for telling me x x hope u begin to feel better soon x

[101952 in reply to 101952]

Hi I'm mags mine started up 2 months before they found 2 tumours in my bladder as well and I am also wondering if it's connected iv had them taken out over xmas x